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Here are some suggested organisations that offer expert advice on SN.

Support for families of children with undiagnosed genetic conditions

(1 Post)
SWANUK Mon 03-Oct-11 20:22:38

Hi all, my name is lauren and i am the project coordinator for SWAN UK which is a support project for families with children with undiagnosed genetic conditions / who are going through the process of diagnosis. If you would like to be able to chat to other families in similar situations to you and access information about genetics please do come and find us on facebook under SWANchildrenUK or check out our blog You can also contact me directly on or 0207 7043141.

You can also get accessible information about specific chromosome conditions from UNIQUE, the rare chromosome disorder support group,

Take care and good luck, Lauren

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