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Here are some suggested organisations that offer expert advice on SN.

Glut1 DS aka De Vivo Disease

(2 Posts)
zebradebra Wed 28-Sep-11 15:25:56

Hi
I was just wondering on the off chance, is there any one alse out there that has a dc with this disorder?? Our DD is awating a diagnosis. I am aware it is a rare disease but thought i would try and see if there is anyone else out there.

Thanks in advance.

totallyyours Fri 30-Sep-11 17:16:31

Message deleted by Mumsnet.

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