Hi there,
Not posted for ages but lurk a lot. I hope someone can help me. My daughter has various issues, hypermobility, very low muscle tone, only learnt to walk at 3 and a half, and lots of genetic markers. Microarray tests have not managed to put a name to anything. However an MRI scan has shown her to also have tethered cord syndrome. She is having an operation for this in a few weeks.
Has anyone got any experience of this? Apparently she has to lie flat for five days! Any suggestions on how to get a (just) 4 year old to do this??
Any shared experience would really help me.
Thanks
Sara
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Tethered Cord Syndrome
5 replies
madlet · 16/09/2011 11:52
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