(wrote a massive post and it appears to have disappeared!
I have a 12 yo with SLD, autism, severe physical disabilities, challenging behaviour, chronic epilepsy. I have no family closeby to help even with my nt children (2 others) My husband works long hours and I have had to give up my job to care in the last 12 months because my child condition is deteriorating. We received a very small care package of 5 hours care of a saturday (daytime with a carer) and a few evenings after school (2hours at a time) so i could work or if I was not working those shifts I could spend time with my other children. I am at my absolute wits end. I had n respite for the almost 2 months of the summer holidays and my husband had to take three weeks annual leave to help me so now he has no holiday left. I have to go to my gp for medication as I am so anxious.
I just wondered if this is happening to anyone else? :(
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I have a severely disabled child and social services have cut my care package to NOTHING, is this happening to anyone else
30 replies
RogerMelly · 14/09/2011 14:59
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