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Here are some suggested organisations that offer expert advice on SN.


(10 Posts)
sazale Fri 09-Sep-11 23:45:16

i was wondering if an ADOS is a requirement of receiving a diagnosis? We are looking at a waiting list of at least 10 months for an ADOS and we can't see Psychiatrist till she's had it! I'm considering going private as the amount of waiting lists she is on and the amount of "professionals" moaning about the inadequacy of the others, no one communicating with each other and only dealing with their "bit" which seems to miss difficulties that she has is getting ridiculous!! Could do with someone who knows about overlapping conditions etc. Just wondering if worth pushing CAMHS to see Pysch b4 ADOS.

logi Sat 10-Sep-11 01:17:16

My son did the ADOS test and it came back not ASD according to the test but he was diagnosed with autism after further assessments.

Parietal Sat 10-Sep-11 01:54:56

ADOS isn't 100% required for an ASD diagnosis but is the best diagnosis tool available so it is rare to get a dx without it. Especially if your child does not have classic autism but has more of a mixture of symptoms.

dolfrog Sat 10-Sep-11 01:59:42

Have a look at this article about ASD diagnosis How many tests does it take to diagnose autism? and the possible implications post 2013

lisad123 Sat 10-Sep-11 09:31:12

I would push, services should be need lead, NOT dx lead.
Both my girls have had dx via ADOS testing, but this was done by the specialist speech therapist.

sazale Sat 10-Sep-11 12:43:48

Thanks guys, don't know what I'd do without this forum! I'm gonna push him for more input and maybe see if he will organise a CAF. Can a CAMHS practitioner request a CAF?

justaboutstillhere Sat 10-Sep-11 12:56:12

Message withdrawn at poster's request.

sazale Sat 10-Sep-11 13:40:34

I thought it might make them work together because they keep moaning about the other agencies input! CAMHS not happy with school and vice versa, physio saying not sure how my daughter managed to pass the balance section on dyspraxia assessment, OT discharging as dont have staffing and can't give input to secondary schools only primary, paediatrician only dealing with physical issues not developmental, on waiting list for speech therapy, feeding team and ADOS, OT supposed to refer to Ed Psych but I don't think they have! It's getting beyond a joke! Podiatrist also involved and physio arranging hydro therapy although was referred to wrong section of physio so wasn't sure of what help they could offer. Also got Irlens screen next week! I don't know if I'm coming or going!! None of them communicate effectively with each other so I have to go through everything at every appointment!!

justaboutstillhere Sat 10-Sep-11 13:46:49

Message withdrawn at poster's request.

sazale Sun 11-Sep-11 01:28:54

I think thats the route we are going to have to take x

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