Here some suggested organisations that offer expert advice on SN.
Private SALT in Edinburgh Area?(17 Posts)
This is the first time I've posted, but I'm a long-time reader.
Some background - I have 2 little boys, ds1 who recently turned 4, and ds2 who recently turned 2. I'm posting here about ds1, who has global developmental delay. He's been under the care of a paedatrician and various other professionals since the age of about 10 months, when the medical doctor treating him for reflux noted some concerns. He sat up at 10.5 months, crawled at 12.5 months and walked just before 2 years, although it took him a good 6 months to get confident. He had a brain MRI and blood / chromosome tests at 12 months, and more in-depth chromosome tests in the past few months, all of which have come back fine. He is happy and very affectionate little boy who attends private nursery 3 days a week - nursery have been great with him, but do struggle sometimes due to his short attention span and frequent unwillingness to do what he's told!
Basically, he appears to be following a 'normal' path of development, just slower than his peers. So far we have no reason for this, although doctors do continue to monitor his small head circumference. He has made progress in some areas, but still experiences significant difficulties with fine motor skills and speech and language.
My husband attended the Hanen programme for parents a couple of years ago, and we have a couple of the Hanen books, which we try to follow the principles of, but sometimes struggle a little as it's not always easy to be in that mindset 100% of the time. He does see an NHS speech therapist, but his contact with her is not frequent, and I often feel he simply there for review. A lot of the advice we receive from her is based on the Hanen principles as well, so we are often receiving advice we are already aware of, which is nobodies fault.
About 6 months ago he was referred to a specialist communication clinic at my insistence. I had queried whether he could have verbal dyspraxia - this was ruled out, and the conclusion was that he did not have a language disorder, but more of delay in line with his other delays - they estimated the delay to be approximately 1 year. Another discovery was that his understanding was not as good as we thought it was - we always thought his understanding was far better then his expressive language, but apparently not - this has become more obvious to me in the past 6 months now, which I guess is the significant factor in his expressive speech delay.
Anyway, with him due to be starting school next year (we are in Scotland), and with the realisation that his language skills are now on a par with his little brother, I feel that we need to try and help him a little more. I was thinking about possibly trying to contact a private speech therapist, with the hope that perhaps they could visit him at nursery on a more frequent basis. So, I've posted here to say hello and share our story, but to also ask if anyone has any recommendations for good private speech therapists in the Edinburgh area?
Congratulations if you've reached this far Many thanks for listening!
I am Glasgow but my general advice is that you need to be sure that any speech therapist is experienced with children with significant delays both in receptive and expressive terms as you may find that many are only really able to work with typical children with pronunciation/articulation issues. I think there is a database somewhere on the internet that lets you search by post code for a speech therapist.
I will try to find the site for you and post it here
Message withdrawn at poster's request.
Message withdrawn at poster's request.
Database is here www.helpwithtalking.com/
I agree that getting in touch with the Early Intervention service is a good idea too - you don't need any diagnosis to access the service and it is a charity.
That's great, thanks to you both. Have never heard of the Early Intervention charity before now! Have already e-mailed them for information.
A useful source of real life support from other parents is Scotland Yard Adventure Playground down at Canonmills. They have a 0-7's group that meets there on Monday afternoons during term time. All the kids have some kind of speech and language delay, plus siblings and parents are welcome too.
Our experience has been much like yours, ie bugger all actual direct therapy from the NHS. We looked at private SALT, but instead went for an ABA therapist, who has incorporated speech therapy and a bit of occupational therapy. Early Intervention Scotland would be a good place to start.
I have heard about the Yard, but unfortunately my husband and I work on Mondays and our son is in nursery all day.
If you don't mind me asking, what are the circumstances with your child? Have you found the ABA therapist helpful?
I'll pm you with our full story!
I'm from Edinburgh too and have been looking for a group of other parents with children with some extra needs. My son is 14 months and is delayed developmentally. He has low muscle tone but we don;t really know what's wrong or what the future holds.
I'm very much a novice at navigating the SN system, but places we have found helpful are The Yard (see above) and www.kindred-scotland.org. Kindred might be able to signpost you on to the right support group.
I've found that parents tend to gather together around particular diagnoses and if your child's dx is very vague or very unsual then it can be hard to find a network to fit into. That was our problem for a long time. But enterprising parents seem to be setting up new support groups for obscure dxs all the time.
I've not contacted them, but have you tried Contact a Family?
Is your son receiving any therapy at the moment? If you ask, the therapist might put you in touch with another parent. I pestered our SALT when my DS had eating problems a few years ago and she did put me in touch with another mum with a similar aged boy with eating probs.
Best wishes for you and your son.
Hi again Lou - I saw this bright start playgroup advertised today. Maybe you already know about it.
Hi, Just wanted to say thanks for introducing me to Scotland Year. We went today and DD loved it. She is still abit young but we will definately be back. Going to try to get to the Mon pm group but it may be too much after preschool
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