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suspect dd1 has dyspraxia hv first paedatrician appmnt at hosp tom

(27 Posts)
tinkbig Mon 22-Aug-11 09:40:22

abit nervous
worrying that he will see her and say that she is normal and that we r being silly
hv had concerns for a little while mentioned it to the school , had a meeting with senco and her teacher they hv noticed 10 areas of concern

main issues and areas of concern we hv :-

puts shoes on wrong feet
sleep issues
tantrums alot
has trouble riding a bike , throwing a ball
gets tired easily especially walking
very fussy eater and messy
loud shrill voice
very excitable
doesnt listen

will be 6 a wk today

LIZS Mon 22-Aug-11 10:46:11

How about her ability to follow and remember instructions, dressing, fine motor skills such as pencil grip, puzzles, playdough, drawing, buttons and zips, any sensory issues around touch (clothes, sand or water for example) or noise . Take a list and you will probably be asked questions about her birth development and milestones as well as she being asked to do simple things such as puzzles or copy a picture or follow a line with a pencil. Be prepared for there to be some grey areas and not come away with a diagnosis. Some of what you describe could also be attributed to other conditions such as ASD and APD and there can be overlaps with dyspraxia and dyslexia et al.

IndigoBell Mon 22-Aug-11 10:55:35

Good luck for your appt.

The paed won't tell you you're being silly - nor will they think it.

You've got conerns, the HV has concerns and school has concerns. You are right to be taking it further and seeing someone who is actually qualified to diagnose.

Good luck.

tinkbig Mon 22-Aug-11 11:44:45

Thanku ladies

Yes also problems with

Dressing struggles with buttons etc
Has messy handwriting
Hates loud noises
Finds it hard to follow instructions

Re milestones

Sat at 9 mnths
Crawled at 11 mnths
Walked at 16 mnths
Was a whinging baby

Is fine behaviur wise is fine at school and say with grandparents
Awful at home

tinkbig Mon 22-Aug-11 11:54:15

have a list prepared
printed one off of dyspraxia foundation site - hv ticked all concerns we have and in another colour concerns school has
and written out her milestones and main problems we hv

coff33pot Mon 22-Aug-11 16:41:55

Pead wont say to you that you are being silly.

It is good that your HV/school has noticed these concernes. You are right to go and have them investigated.

Good luck x

mrsbaffled Mon 22-Aug-11 17:50:58

I will be interested to hear how the appt goes. Please come back and tell us .... DS(7) sounds just like your DD (although his crawling / walking etc milestones were achieved a bit earlier - is it even possible to have dyspraxia and not be delayed on these????) and I am going to the GPs later this week to request referral....

tinkbig Mon 22-Aug-11 18:49:02

thanku grin

will let u know how it goes
appmnt is 3:30pm

LIZS Mon 22-Aug-11 19:00:19

ds rolled before 10 weeks, sat from 6 months , crawled at 9, walked at 14, all within the "norm" and generally a fairly placid baby yet is dyspraxic so yes perfectly possible. Good luck tomorrow tink

mrsbaffled Mon 22-Aug-11 19:06:01

good luck x

tinkbig Tue 23-Aug-11 18:01:32

paedtrician has confirmed that dd1 has developmental dyspraxia
no further action being taken
he said not to worry

mrsbaffled Tue 23-Aug-11 19:22:33

What sort of tests did they do? I am right this was your first paed appt (I am wondering how quickly we will get to this stage in the process)...?

How are you feeling?

IndigoBell Tue 23-Aug-11 19:49:24

Tinkbig - the paed is wrong. You do need further action. For starters you need to see an OT.

The paed should have referred you. You can either fight to see one on the NHS or you can see one privately.

You don't need to worry (although of course you will) but you do need to be proactive and assertive to get your DD the help she needs.

School didnt tell you to see the paed so that he would do nothing for her.

tinkbig Tue 23-Aug-11 20:47:33

mrsbaffled- yes this was r first paedatrician appmnt
retests dh said they took her weight and height, got her to hop etc
not much else

indigobell - i thought that it was odd that he isnt referring her to anyone else!!
my dh took dd1 to the appmnt so i dont know exactly what was said
they r going to send us a letter regarding there findings
can u get to see an occupational therapist without a referral?
hopefully the letter will explain there thoughts

IndigoBell Tue 23-Aug-11 20:49:19

I don't know if you can get to an OT without a referral. I don't know if either your GP or your SENCO or your HV can refer you.

We were referred by our paed.......

tinkbig Tue 23-Aug-11 20:51:26

thankyou indigobell you are a big help grin
we have seen senco at school they r a big help
will wait for letter to see what they say

Chummybud1 Tue 23-Aug-11 20:57:50

My son saw the paediatric first and she brought in ot and lt. The paediatric will probably just ask the usual question such as development milestones, school, bevaviour.

She will then refer if she feels it necessary

The ot will go through a list of activities depending on age of child like running, hopping, throwing a ball

It not really that bad and the kids just think they are playing.

Good luck hope all ok

tinkbig Tue 23-Aug-11 21:18:22

hi chummy

saw padatrician today said is developmental dyspraxic did a few tests
not referring to an ot
they rsending a letter

I'm really cross with your paed if he is going to do nothing for your DD angry. If he has dyspraxia then she will really benefit from OT. I would call and ask how long the report will take to come as ours took 6 weeks at least. You don't want to wait all that time for a report which says nothing.

LIZS Wed 24-Aug-11 11:07:47

I'd also find it strange that she hasn't been referred to OT for review at least. See what the letter says and do follow it up. Mind you ds had a 18 month wait for assesssment by NHS OT so she may have progressed in the meantime anyway.

coff33pot Wed 24-Aug-11 12:37:33

What happened to early intervention angry

I would go to your GP armed with a letter from HV and school showing their concerns and that they feel she needs to see an OT and ask him to also write to your Pead if he cannot refer to OT himself.

moosemama Wed 24-Aug-11 12:44:03

Tink, he's not referring? That's ridiculous!

You will know more when you get the report, but if she tested as dyspraxic then she will need OT. Our report took about six weeks as well - I think that's pretty standard.

In our case they cleverly assessed ds as bang on the cut off for not receiving support. angry I've since found out that this is typical in our NHS Trust and down to being underfunded and short-staffed. The report has still been useful though, as it recommended things that the school could do to support ds in the classroom (wobble cushion, being allowed to get up and move around regularly, special pencils/pens) as well as asking them to do the BEAM programme with him daily - something that is going to be implemented next term. The report also stated that he shouldn't be made to do joined up writing and should type longer pieces of work.

She recommended a couple of things we could buy to help him at home as well, such as a different type of wobble board and some special cutlery, which have both been useful.

tinkbig Wed 24-Aug-11 17:22:49

cheers mm u r such a help grin

will wait for report and take from there

Chummybud1 Wed 24-Aug-11 22:18:03

Hi go back to gp and demand a referral, if not take the report to another gp. The OT is your life line to getting help so it's a must. I don't know where you live but I am in the highlands, and am a member of the HDCD sorry can't do links. Google them, not sure if people outside the area can become members but their website is accessible to all and has heaps of info.

Not sure of your child's age but the school can refer to the OT so you could try that route or speak to your health visitor.

Early intervention is crucial. If my own son had an earlier diagnosis his first years at school would have been a hell of a lot easier, however my OT and LT are fantastic and I can't tell you how much they have changed his life.

You must be prepared to fight it's just part of the course so take nothing at face value and arm yourself with as much info as you can.

tinkbig Thu 25-Aug-11 10:01:23

thanku chummy

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