Hello, it's all cosy over here!
As per title, not a SN issue, but.... DD2 (13) faints a lot, I'm trying hard to get a. a diagnosis, and b. some treatment (rant here for background. In the meantime, I can't leave her alone at all (unless she's asleep, on a blow up matress on the lounge floor ) as she faints if she sits up slightly, if she stretches, if she moves at all if it's a bad day. At the moment we're kind-of coping as DH is working from home, and DD1 is around, but in a month she's off to uni, and a month later DH will be working from an office. How on earth do you manage to get food cooked, other DC to school/clubs/friends for tea, do any cleaning, etc?
Initially I thought, oh, it'll be OK, I managed with babies, but it's totally not like that at all and I can't see my way round anything. We have a wheelchair, so theoretically she can go in other rooms, but for example today, on the last three times she's been to the loo, she's fainted 14, 17 and 5 times respectively after being upright for less than two minutes (admittedly this is much worse than it has been, just one faint after another after another). So if i'm peeling potatoes in the kitchen and she starts fainting, I have to drop everything and get her lying down on the floor. I have once or twice cooked while stepping over her, but that's downright demeaning, and I refuse to accept it as a solution.
How do you parents of DC with ASD (where you can't not be watching them) manage? I know the answer is "with difficulty" or "we don't", but any hints and tips gratefully received .
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SN children
Not a SN issue, but I reckon you lot over here would know
21 replies
IShallWearMidnight · 18/08/2011 18:54
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zzzzz ·
18/08/2011 19:56
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zzzzz ·
18/08/2011 21:54
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merlincat ·
18/08/2011 22:17
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