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Here are some suggested organisations that offer expert advice on special needs.

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Here are some suggested organisations that offer expert advice on special needs.

SN children

The LEA have finaly BANNED me from contacting them !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!11

37 replies

hannahsmummsy · 09/08/2011 17:11

the letter ends "we are concerned that the high frequency of telephone calls from you is impacting on our ability to respond your inquries. in order to ensure all information is clearly communicated bettween parties we request that you corespond with our SENCAN office only through writtern correspondance.Please address your letters concerning educational inquries to xxxxxxxxxxxxxxxx , Head of sen commisioning SENCAN, anytown , anyville , "

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hannahsmummsy · 09/08/2011 17:14

least dd case has made it to the top person

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Lougle · 09/08/2011 18:08

How often have you telephoned them, Hannahsmummsy?

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hannahsmummsy · 09/08/2011 18:10

a few times to ask advice etc

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hannahsmummsy · 09/08/2011 18:19

i wrote back and told them that the local office is often unclear and unhelpful often plain rude. I said to remind they they are dealing with real parents with real children with real difficulties who live in the real world beyond the paperwork of the lea office. i have told them we are definaly going to tribunal and nobody apart from xxxxxxx , is allowed to phone me and the senior Ep is not to phone the office where DD is being privatley treated ,to try and get info out of them again. they said that a whole variety of support has been agreed ,so i asked the moron to list it. "the school is confident it can meet dds needs in sep " so why the fuck cant the arseholes write her a care plan , thats all im asking ffs

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Lougle · 09/08/2011 18:34

You sound very frustrated and angry. I can understand that. I do think that you are going to find it even harder to access the help your daughter needs if you are seen as hostile and aggressive.

Is there any way you can talk to a parent partnership person? I know that often they are 'close' to a Local Authority, but in this instance, you wouldn't be looking for them to negotiate, but rather to smooth the relationship between yourself and the LA, as you have obviously got off to a very rocky start.

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Oblomov · 09/08/2011 18:36

Not that its the same thing, but I was asked by the DVLA not to phone them again. I was phoning them every day or every other day, for over 9 weeks, whilst trying to get my licence back. But i was phoning for a reason, liek to confirmt hat yet another fax from my Consultant had actually been received.
I would leave it a few days. Then write again. And then phone.
You do certainly need to be careful. But at the same time, try not to take this to heart too much.

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singforsupper · 09/08/2011 18:37

Have you tried the local Parent Partnership Service?

Our LEA are just a bunch of form-fillers. And one 'firefighter' who comes and appeases the pushiest parents so they don't go to the press.

Cynical? Moi?

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hannahsmummsy · 09/08/2011 18:41

one lady on pp is good the one she job share with is just the LEA puppet

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hannahsmummsy · 09/08/2011 18:45

lougle i get what you mean , so i have been very complimentary about the school and there keeness to support dd and other suck up crap xxi did start my letter "thankyou very much indeed for your letter datted xxxx"and ended it thankyou for your attention to these matters , in reality she will have left next year and i dont want her to have another brakdown , thats all

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singforsupper · 09/08/2011 19:06

I guess you just have to play their game and keep sending in letters. Always copy your letters to the school and the parent partnership service. Make sure you let them know that the letters are copied (cc: etc), occasionally cc: it to someone like the NHS Trust manager just to keep them on their toes.
x

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WetAugust · 09/08/2011 19:23

Outrageous!!

They seem to forget that they work for YOU.

I would initiate a formal complaint and also contact my local councillor.

I would also send a copy of their instruction not to ring them to SENDIST.

If they were providing timely and helpful responses to your queries and fulfilling their obligation to 'work in partnership with parents', you wouldn;t have to ring them repeatedly- would you.

Bastards for you

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coff33pot · 09/08/2011 19:31

oooer!

I guess they are not going to forget you

Well you just wrote a letter the other day so that one is still in the pipeline and they do need to be allowed some grace to reply (however annoying it is )

You copied the letter and sent it to all the relevant ppl so I would leave it quiet for a week then either phone or send a short quick letter asking for acknowlegement of your letter dated blah blah blah and what the outcome is going to be. Send it to the people he suggests and see what happens. I would seriously get parent partnership on your side though as they are able to stay cooler and neutral and just might gain more information from them for you x

Its so hard to keep your cool when trying to fight for your kids but at least you have put a spanner in the works and hopefully using pp as a go between might help you xx

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mompa · 09/08/2011 19:38

Hello - are you not able to e-mail rather than write letter? I find it works much better with lea and you can cc everyone you need to on e-mail and have audit trail

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hannahsmummsy · 09/08/2011 20:09

thanks every one , they are just pissed of because i reported then to mp (see my sen bollocks thread). I have got one of the parent p , on side they wrk in same office and got me info , cried down the phone to her.
they sent me a copy of "HELPFUL LEAFLET . in return im going to send them a copy of sencop.lol

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hannahsmummsy · 09/08/2011 20:16

im not so worried about dd going back to school in sep as the minute they neglect a single one of her special needs , i will be writting to xxxxx as fast as you can say sendist tribunal ,i sent xxxxxx an incedent report my dd wrote where she is so affected by school , she wants to kill herself , just to make the lea penpusher a picture of the reality.i also sent a letter from 2008 , responding to stat assesment request , they didnt tell me my right of appeal , and i have asked for an investigation , had i been informed of my parental rights i would have asserted them then , and would have carried on with the tribunal process until she was assesed

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madwomanintheattic · 09/08/2011 20:44

do you not think it would be helpful for the senior EP to be working in consultation with the private therapist?

i mean, i know you're pissed off and all, but most of us spend our time trying to get people to talk to each other, and complain that our private therapists/ assessments are not being used/ read by the lea...

sometimes you need to work out what is the best way to achieve good support - in my book, the lea and private therapist working together would be a great start. why is it just 'getting info out of them'?

the rest of it is fine - just play it by the book and get advice from other agencies as suggested.

but try and rethink about information sharing, maybe? you're all trying to help hannah.

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hannahsmummsy · 09/08/2011 20:51

i just feel the lea ep will want to bias the private eps findings.

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hannahsmummsy · 09/08/2011 20:52

im in favor of the school getting the info as the private ep likes to work in this way.

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WetAugust · 09/08/2011 21:53

Having spent a couple of years dealing with my own LEA's equally as unhelpful fuckwits I can empathise with your frustration.

You're quite right to prohibit any LEA employeee such as Ed Pysch from contacting any medics / therapists involved with your child. I did the same. I wanted all converstaions about my DS to be held with me present.

I also rang my LEA several times a day some days. Was never 'banned' though like you have been.

Sometimes you have to make yourself so much trouble to them that it's easier for them to solve your problem than it is to keep having to try to fob you off.

Like you I also involved MP - although Local Councillor was much more effective.

Some LAs are reasonable but some are utter bastards who need to be dragged to Tribunal.

You carry on - nothing you can do will prise open their purse strings other than a Tribunal but you can make their working lives as much a misery as they're making yours.

Bitter and twisted? Definitely.

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hannahsmummsy · 09/08/2011 22:06

my local counciolors kids went to she same school as they are also catholic , they said the sen dept was shit !!

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hannahsmummsy · 09/08/2011 22:12

i think it was because i wrote to the mp and told him there blanket ban was braking the law and could he please investigate it , so they want everything in writing to the top person so they can monitior it.im taking dd to the meeting they are planning , she is nearly 16 and has a right to be involved , if they saw dd and how much this impacts on her it will hopefully get them to see reality.

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hannahsmummsy · 09/08/2011 22:14

wet august , what did your dc case involve , if not too personal ?

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WetAugust · 09/08/2011 23:15

Much the same as yours Hannah. An LA who refused to acknowledge gravity of son's needs or provide suitable placement. He needed 24 hr residential placement to enable him to be discharged from the adolescent pyshciatric unit that was supporting him after he had breakdown caused by educational neglect.

I can well remember the overwhelming anger and frustration at haviing to deal with these LA bastards whose only goal was to save their budget and swan off home after work leaving me to deal 24/7 with a son who was totally broken and desperate for a specialist placement so he could start to recover from the abuse he had been subjected in their mainstream school.

I would write several letters every night, sometimes taking me all eveining to anyone who I thought could break through the deadlock and force the LA to open their purse strings.

They have absolutely no idea of the effect of their (in)actions on us parents.

It was a period of utter despair for me.

So do whatever you feel you need to - no one should criticise you. You're doing what a mother should be doing - fighting for help for your child.

Best wishes

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hannahsmummsy · 10/08/2011 00:16

I know the old chestnut of "your anxietys are rubbing off on your child" will come up at this poxy sham meeting they are planning to have , i will put it to them that any parent would be anxious with no care plan and a child ,, who tottally out of charecter wants to truant and throw themseves under a school bus rather than get on it. what was the out come of your ds tribunal wet augusT?

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WetAugust · 10/08/2011 00:32

Hi

Yes that cop out - blame the parent. Was subjected to a lot of that. WTF parent wouldn't be stressed out to the eyeballs in our situation,

I didn't need to go to Tribunal in the end. I lodged the appael with SENDIST and then Connexions managed to get funding from the Learning & Skills Council for a residential placement in a FE College for ASD. To take up that offer he had to leave school. As he left school the LA ceased his statement - immediately.

As he then had a suitable placement I decided against continuing with SENDIST as I'd also have to appeal cessation of statement as by then he ws living at FE college.

He left school (was forced out through failure to provide suitable school placement) at age 15 with no transition plan, etc etc etc.

Bastards.

Hope things improve for you soon.