Hello, my daughter (aged 8) was diagnosed at GOSH after searching many avenues with a deletion on the long arm of chromosome 2. I have been told that it is quite unusual and have been unable to contact any other families with a similar diagnosis. It effects my daughter in many different ways, ADHD tendencies, dyspraxia, sensory issues, inability to regulate herself. She is very bright/sharp and according to GOSH has an IQ of 130!!! She can be and is lovely, unless you spent a bit of time with her you would quite often not notice that something was wrong, unless it is a really bad day and then watch out!!! She has a full time statement at school (mainstream).
Does anybody have any kind of similar experience?? I often feel so alone and have so little knowledge of the condition. Those in my family all say "she will be fine when she is older". They mean well they just dont understand.
Thanks for reading xx
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Does anybody have a child with a deletion on chromosome 2???
5 replies
razzdazz · 04/08/2011 22:01
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