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developmental delay of 2 years diagnosis, please can you give me your sucess stories

(11 Posts)
pigletmania Tue 26-Jul-11 21:52:49

Well there was a multidisiplinary team meeting, consisting of the Paed, SALT and Ed
Psych, and as dd does not display the ridgid and repetative behaviours element of ASD, they did not make a dx of ASD, rather developmental delay of 2 years (she is 4.5 years), in areas such as cognition, speech and lang, emotion, information processing. They are not ruling out ASD but would rather wait and see how dd develops.

I feel a bit sad that there is no hope for dd. I do have my own success story as I was in a similar situation as dd as a child but worse my mum tells me, but later on at 19 years, I got a dx of dyslexia, dyspraxia from the Ed Psych, got help at college, I managed to catch up and have completed a BA/MSc degrees. I would love to hear others with similar stories who have managed to catch up or overcome a delay later on.

IndigoBell Tue 26-Jul-11 21:53:56

Delay means just that. That she will get there, it will just take her longer than average.......

pigletmania Tue 26-Jul-11 21:59:41

The paed just sounded so pessimistic and I just felt really sad

pigletmania Tue 26-Jul-11 22:00:50

dd just sticks out like a sore thumb amongst the rest of her peers and her progress seems slow. hopefully if we get the statement that should help her progress

insanityscatching Tue 26-Jul-11 23:02:07

Dd at age two had a developmental age of between 6 and 12 months as well as a moderate to severe autism diagnosis.Now she is eight she is developmentally on course or above across the board, she is academically bright (exceptional according to HT) and the autism is pretty much unnoticeable. No miracle cures here just lots of hard work really, 30 hours 1 to 1 from 17 months until age four or five and I still reinforce stuff that I think she might not have grasped but I think that her future is bright now.

pigletmania Wed 27-Jul-11 04:08:23

Thanks insanity I have always tried at home to teach her new things, sometimes I think that its going right over her head. She is due to start school in September (with hopefully a statement, we are going through the process). I am trying to prepare her for school, teaching her to read the level 1, 2 oxford reading tree books, learning to recognise a few words each week, and doing basic numeracy, as well as trying to teach her phonics, Her concentration is not too good at the moment, so i have to do it in short bursts.

pigletmania Wed 27-Jul-11 04:09:28

I know that she is a clever girl, when dd is concentrating she does learn quickly, and knows more than some of her peers, but has got speech and lang delay so it does not come out as well.

insanityscatching Wed 27-Jul-11 07:56:24

I didn't teach dd to read or write at home even though it was obvious she was memorising words but I did teach her to play, to talk, to communicate, to cooperate and concentrate (at two dd had no words and couldn't play) so that by the time she entered nursery (late,part time and with a statement) she was a bit below average but by the time she left reception she was the most able in her year and she has stayed there since.

pigletmania Wed 27-Jul-11 18:29:51

Thanks insanity I will smile

TotalChaos Wed 27-Jul-11 18:44:41

DS was 18 months language delayed at 3 (didn't meet diagnostic criteria for ASD but has traits), 12 months delayed at 4, and was testing at the low end of normal range at 5.5. He's still quirky and v young for his age in some ways at 7, and didn't really get to grips with reading until 6.5, but is doing pretty well with literacy and maths now.

pigletmania Wed 27-Jul-11 22:43:17

Thanks everyone, it really helps seeing that there is light at the end of the tunnel

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