Just wondering, does it get better? Not the CP, I know that's static and won't get better or worse as such. What I mean is the endless hospital appointments... I counted up and in the next 9 weeks we are going to be at one of 2 hospitals 7 times. Her consultant, orthotics, developmental check, joint orthopaedic/paediatric/physio clinic, physio, respiratory clinic (she also has asthma...) and allergy consultant (...and hayfever). Since the physio raised the possibility of CP in April, we've already had 2 orthotics appts, 2 consultant appts and physio.
So in 6 months it'll be 12 visits. Is this likely to carry on? She's 2 and was diagnosed with mild diplegia in June. I just feel like my feet aren't touching the ground at the moment (and I want my own named and free-of-charge(!) parking space!)
We also go to the CDC twice a week for physio sessions and go to a swimming group at the local special school. Bless her she copes pretty well, but some days we only manage her stretches and other physio twice in a day instead of the requested 4 times and I feel like I'm failing her. :( I know I'm not failing her, but I want her to have the best chance and when I'm tired and it's been a busy day (like today) I feel guilty that I haven't made the time for her stretches.
Sorry - this wasn't meant to turn into a self-indulgent post. I shall have and paint on my 'I'm coping' smile.
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27 replies
Galena · 22/07/2011 18:51
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