Here some suggested organisations that offer expert advice on SN.
When DS has a meltdown and you think it was worth it(7 Posts)
Dont suppose there would be many parents that would be thrilled to have there DS smash up their bedroom for an hour during masive meltdown but yesterday it was worth it!
Going through the stages for diagnosis of poss AS for DS who is just 6.
Had an appt yesterday with a comm pead for assessment regarding SEN statement. DS woke up and refused to get up and didnt want to go out the door let alone go to this appointment. Tried explaining to him it would all be ok and had advised him of appt days before hand so he knew it was coming and it was just a chat with a nice lady etc etc. NOPE not having it.
We did get there and got ushered into this tiny room. The questions pushed forth and we realised the pead had no knowledge of DS whatsoever, not a single report and thought I would have to start at the beginning. DS was his usual self interupting with his anxious what is this for, that for, that button for, the 2 inch sticker on the ceiling for....you name it followed by why am I here and can we go now. He wrote his name then said can we go now. He copied shapes and missed one but said want to go now. Then he had to have his hear listened to and tummy felt so got on the bed and was told to stay still. He did it and then promptly jumped off and rushed to the door to grab the handle. He was going now We actually lasted 20 mins precisely I told DS that we had to listen to one more thing so he scrambled up onto the bed and started punching slowly the bed head in a rythmn. End result was the pead was disgusted he hadnt been seen by a psych yet and that he had no help offered in the process. Is contacting a OT regarding his sensory issues and did say something about a SALT (he is verbal but too eccentric so maybe they help him phrase better? I dont know) AND>>>>she said he will definately get his statement!!!!
I went outside and bawled my eyes out on my poor DH shoulder. It was such a relief that someone spotted his issues without hours of assessments and talks that we have previously had and normally DS who loves single adult attention is good as gold. Half of me was happy and half of me didnt want to be happy because although I know I am right about DS I still kind of didnt want to be iyswim. It was such an odd feeling.
Needless to say DS was so upset about being trapped in there when he got home he was leaping about all over the place and we had to put him in his room to calm down. Hour later and it looked like berut but yessssssssss it was worth it!
Well done young coff33pot! (Sort of ) Sometimes bad can be good! The Paed can't promise you a Statement, though, but good news he is on your side and it sounds like you will get a supportive report from him.
Message withdrawn at poster's request.
Thanks! and oh no at the same time! I thought because she said he would get his statement then that was it?
The statement was sent off by school with cahms reports of assessment and EP assessment on 20th June and in 3 weeks I got this appointment. Head said they are on stage 2 already and rushing it through (according to her mind) Also the head said they (LA) have been known to push for a Locum psych?
Oh well at least in the meantime DS is going to see some proffessional ppl so I may get some tips or advice to help him that alone is a huge bonus in itself so I am grateful for that now when I am going to B & Q
justaboutWILLfinishherthesis Daft thing is normally I am on edge when I am out listening to changes and signs that might indicate he is on warm up mode and planning the escape route or action. This time I just went with the flow! He was treated to the biggest cream bun today. Couldnt give it him yesterday as couldnt be seen to appreciate his meltdown lol but today he was so exhausted and burnt out I had to treat him unbeknown to him!
Message withdrawn at poster's request.
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