I'd think myself very lucky Droves! Both my boys are incredibly SLD but they've still managed to decrease it for eldest (14) twice. Once when he was young and this time they decreased his mobility and I had to fight it for 8 months, appealing twice and going to tribunal! Which we won hands down but even so...the nightmare of it all made me ill (and I was doing my finals at uni too so not a good time) I also only ever seem to get it for 2/3 yrs- have to do it all again when eldest is 16 and youngest 15 in about 18 months. I'm dreading it all again esp with bloody Cameron cutting everything like he is. And they have a genetic condition (fragile x symdrome) so it's not like they're gonna be cured! If they've given you it for 6 yrs grab it with both hands.
My boys are also very mobile- mobility is not just for those who cannot walk but for anyone who is a danger to themselves or others. And if you're still attending to your daughter 3 times or more per night then that is considered high rate.