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Here are some suggested organisations that offer expert advice on SN.

3C syndrome

(2 Posts)
Diwomb Wed 08-Jun-11 15:09:42

My 13yr old has a very rare syndrome called 3C, it affects 1 in 500 million. I'm looking for anyone else who has a child with this

bittersweetvictory Wed 08-Jun-11 17:54:00

Sorry cant help but i remembered seeing this FB page when i read your post,
www.facebook.com/pages/3C-Syndrome-1-in-500Million/140451822664029

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