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Here are some suggested organisations that offer expert advice on SN.

curious to know what services a child with down syndrome should be getting.....

(5 Posts)
devientenigma Wed 08-Jun-11 14:52:19

..........yes a bit vague really, but just wondering what my ds is missing out on with not being in school. Plus all our services seem to be withdrawn.

proudmum74 Wed 08-Jun-11 14:55:59

Hi Devient

My DD is only 14 months, but so far she is getting support from the following:

Paediatric consultant
Portage
Physio
OT
SALT
SENCO
Audiologist
Opthamologist
Cardiologist

proudmum74 Wed 08-Jun-11 14:57:22

Whoops forgot to mention the Educational pyschologist - but all she seems to do is take copious ammounts of notes, so no idea what she really adds yet...

devientenigma Wed 08-Jun-11 23:58:44

Thanks proudmum, he's too old for portage. His GP, SW and cardiologist are great. I know physio, OT and SALT are letting him down. His resoiratory, audio and optamologist are ok. Just have a few niggles as to what else was letting him down. He is also under the behaviour team, psycologist and psychiatrist who are hitty missy!!

sonora Thu 09-Jun-11 07:53:06

My list is pretty similar to proudmums, ds is 3.5

developmental paed
portage
SALT
Nursery SENCO
Ed Psychologist
Audiology/ENT/opthalmology

We don't and have never had NHS physio or OT (unless you count the physio that measures ds feet for piedros every 4 months or so and tells me what a good job I'm doing hmm

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