As you may or may not know, we give DS real food blended up via his tube instead of the medical formula he is supposed to have. Has been quite stressful getting profs to agree to tolerate this as it's absolutely not the norm
Well we just got the green light to ber able to give Luuk real food via his tube when he's in the hospital!!!! I can't believe it. I'm so pleased he can have his usual diet whilst in hospital
I do need to write a letter accepting full responsibility and make and administer the feed which although tiring, will be great.
AND the dietician said she'd checked all my 'recipes' and I was covering all the micro nutrients.....felt really good about that! Protein levels are also great!
Have to give him a bit more, as his BMI has dropped!!! Can't understand that since he's put on more weight in the past couple of months than he did in the whole year before!!! Don't understand. They want me to give him more, I will give him as much as he tolerates!!