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Getting infants off of a feeding tube - dysphagia?

(4 Posts)
jjkm Mon 30-May-11 18:15:57

Message withdrawn at poster's request.

madwomanintheattic Mon 30-May-11 19:39:37

i really like this site
found it very useful

when dd2 was tiny. she was tube fed initially but is 7yo now and eats a (mostly) normal diet. i was very grateful to our feeding slt (who we had from birth) who was adamant that dd2 would eat orally.

it's the 'feed your mind' link on the left - lots of interesting stuff. i haven't looked at it for ages, but used to link to it on here all the time smile

dragonflygirl Tue 31-May-11 19:32:48

Children who are tube fed for any length of time can become orally hypersensitive. See if you can talk to a speech and language therapist (specialising in feeding) or possibly an occupational therapist who should be able to give you some 'desensitizing' ideas even if nothing can be taken orally.

madwomanintheattic Tue 31-May-11 20:50:59

would agree with that - (the link is a site run by a feeding slt) - we did lots of tapping/ facial stimulation etc.

all the hospital would suggest was a pacifier, but it didn't work at all.

do you still have a slt? referral if not would be the most important thing, def. ours kept me sane for the first two years, without a doubt.

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