i have been on here for a couple of months now as we were waiting for our ds to be diagnosed with a rare genetic disorder called williams syndrome.
our wonderful ds sadly past away on may 4 suddenly! we took him to bristol childrens hospital for a routine cardiac catheterisation to check all his coronary arteries. our beautiful ds sadly suffered 2 cardiac arrests during the test, he was then put on a life support machine. however he suffered a further 3 cardiac arrests whilst in intensive care.
doctors told us that an opperation was not viable and there was nothing that could be done to save him.
he was placed in our arms the machines were switched off and he past away peacefully in our arms.
i honestly dont know how we are going to cope now he has gone? my life was filled with appointments with him, salt,dietitian, physio,pead, cardiologist etc.....
he was such a happy little boy!!!!
is ayone out there going through the same thing????
some advice please!!!!
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death of my son due to williams syndrome
95 replies
gingegirl · 12/05/2011 23:05
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