I haven't managed to persuade any of our docs over the last 4 years (have moved around a bit!) to give us gf stuff on prescription
but agree, I can always tell if dd1 has managed to eat something she shouldn't.
The way it was described ot me is that coeliacs have a tolerance level of gluten acceptable in foods (obviously this varies person by person, but the accepted food standard has the tolerance level), but there is NO tolerance level for gf/cf
really? That's awful. I went in with the results and with a prescription sheet of another child with autism who was already getting gf stuff on prescription and said that it was a medical need and children with gluten intolerance were getting stuff on prescription, look.
If you want, I'll happily send you my childrens repeat sheets and you can see if that will help? sometimes if they know it's already being done, they might soften.
fresh bread, spaghetti, fusilli, cake mix, flour, several types of biscuits, pizza bases, bread rolls, crispbread... basically anything that's on the list of prescription foods for coeliacs, I can order.
oh it remains the single most important thing we have done for dd1.
she went gf/cf at just over 2.6, so 4 years ago now. she was totally echolalic beofrehand, with no pain response, and very shut away - everyhitng very much on her terms, not interested in othrs/the world around her.
within a month she was talking a bit (proper chatting stuff, not reciting the Gruffalo non-stop!), had a pain response (thank god I didn't have ot guess what she had done anymore!) but most importantly of all, she was interested in us and the rest of the world. she has become more and more social ever since, and these days, if it weren't for her langugae deay, she would often be taken for NT I think (until something sparked off an ASD special feature anyway )
being gf/cf has given her the space to think and the peace to be able to learn, which is just brilliant
oh, and on the poo front, we changed dd1's bread over the summer, and the difference has been amazing - better poo, and a lot more awareness - maybe in another couple of years she'll get there with the poo training
Thank you Silverfrog as I don't want to let all hard work ds has been on for 3yrs as was always over this "low" Gluten and never tried ds on these type stuff....glad I never did now. That is amazing about your dd language though with the diet brilliant news. All I notice with DS is as ate Playdough was poos++ and sandy colour 'giggly' and just naughty and 'high' for weeks so don't want to risk it now. notapizza I always thought "maltodextrin" was milk so never gave it thankfully as ds milkk free too [phewieee], will look for those pigs sound yummy and Dietry Needs Direct.
1 cup rice flour 1 cup cornflour 1 cup salt 4 tsps cream of tarter 2 cups of water 2 tbsp vegetable oil food colouring
put all ingredients in a saucepan and cook over a low heat for 5 minutes, stir well, mixture will be very runny but will firm up. Remove from heat and knead to remove lumps. Roll into a ball and store in an air tight container, keeps up to 7 months.