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Here are some suggested organisations that offer expert advice on special needs.

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Here are some suggested organisations that offer expert advice on special needs.

SN children

so now dd will be classed as in care ffs

27 replies

2shoes · 15/11/2010 11:57

just had her respite reveiw and it seems as of next year if a young person has more than 75 nights respite they will come under being a looked after child in care!!!
ffs
I look after her and care fo rher

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bigcar · 15/11/2010 12:25

how odd, I could understand if in a 52 week residential school but that just seems daft.

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IndigoBell · 15/11/2010 12:38

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2shoes · 15/11/2010 12:44

beware as It is going to happen to all kids who get over 75 nights everywhere

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5inthebed · 15/11/2010 12:46

Thats just not right. :(

Does that mean she will lose her DLA as well?

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justaboutanotherbirthdaycoming · 15/11/2010 12:49

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Message withdrawn at poster's request.

meltedmarsbars · 15/11/2010 13:02

Its all bollox, isn't it! As if 75 nights is majority care!? They really have no idea at all.

I think they start trying to take mobility off you at quite an early stage. - I heard (a rumour hopefully) in some places you will not get transport if you have a motability car?

I feel the need to strengthen my reserves for a lot of fighting for help over the next few years.

Grrr..

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2shoes · 15/11/2010 13:43

noway she will loose DLA, as she is only just over 75 nights
but It really annoyed me, and tbh I found it offensive(and said so) that they would use that term.
the woman did say that you still get DLA even if you are in care.
but if they did try to take her mobility I would have to reduce our respite.
crazy isn't it

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meltedmarsbars · 15/11/2010 13:46

Mad.

And do you lose any Direct Payments hours?

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TheArsenicCupCake · 15/11/2010 13:59

Totally nutty.

And I would find that offensive too ( angry for you).

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bigcar · 15/11/2010 14:41

I hate to say this, but she was wrong when she said you don't lose dla care component when in care. Mobility is not affected but care is. Look here and scroll down to dla care component and respite, if it's just a one night stay it wouldn't be counted as there is no full day spent in care.

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cansu · 15/11/2010 15:02

i didn't know aqbout this bigcar. I just looked at the link and it also says that the day you go into respite and the day you come out isn't counted. so if you go on a Saturday and come home on the Monday, it is only classed as one day.

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2shoes · 15/11/2010 15:13

I never knew that
yikes, hope I don't end up owing them money.
think it is mad, and will lead to institutes again, as people just won't be able to afford to care for thier kids
odd that the SW never mentioned this, yet she has had this ammont for a couple of years

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2shoes · 15/11/2010 15:15

wonder how it works as one week she goes for a tuesday and wednesday and the next week a wednesday and friday(not every week though.

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donkeyderby · 15/11/2010 15:31

DS has been a 'Looked After Child' for years as he's had a Link Family and now a respite home. I don't like it either, but noone considers them to be 'in care'. You just get used to the term. shortened to LAC, it doesn't sound so offensive.

What is offensive is the paperwork that goes with LAC reviews. Your child is asked to fill in a booklet that is obviously designed for children with no disabilities who are in care. It pisses me off and I put it in the bin

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2shoes · 15/11/2010 15:34

lol I refused to fill in the stupid child like one they gave me to fill in.
good news (for me) though DD is that there is no room at the respite place place you use until i think November 2011 so as there is no where else that she can go, she will be able to continue to go where sh is now.
still no news on college though as the other place still havn't got their report in!!

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2shoes · 15/11/2010 15:37

oh and this was the LAC reviewing officer(she has the same first name as me , just in case she is yours as well) she said that from April next year, they will be classed as in care or "looked after"
so it will affect families of younger children as it will be on thier record that they have been in care for how ever many years.

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herjazz · 15/11/2010 15:42

Eh? That's ridiculous. Think of all the nt kids that stay overnight at grandparents / friend's houses on regular basis. Are they also 'in care'?

Sounds to me like it is another way for govt to start making cuts somewhere along the line.

And was going to say that we won't be affected by this as all respite care is in our own home. Cos theres no danger of that being affected / cut / stopped right

Pffff depressing

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cansu · 15/11/2010 15:57

I also find the label looked after child offensive. ds1 has two nights per month in respite - i think it is pretty clear who is looking after him! I think it may well put people off seeking help for their dc's.

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smalltownmum · 15/11/2010 16:13

It does sound strange at first to think of your child as 'looked after', but it doesn't diminish your parental rights and in fact it brings more rights to the child. There is a lot of legislation which makes life easier for those classified as 'looked after', including priority school entry and getting on the housing list.

My view was that if they were going to insist on labelling my child in that way, I would damn well make sure they get the full benefits of getting that label! There are even college scholarships and charities which only provide help for children who are 'looked after' and I've made sure my child had access to these.

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bigcar · 15/11/2010 16:24

interesting smalltownmum

2shoes, you should be ok, the wednesday and friday wouldn't count at all. The tuesday, wednesday wouldn't count either if she left that place and went to school, don't know how it works if respite is at school though. Even if it did count it would only be counted as one day.

does sound like they might be trying to find a way of making cuts somewhere through this, not that any of us cynical or anything

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2shoes · 15/11/2010 16:45

respite is at school, but seperate iynwim
so may be that is why

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donkeyderby · 15/11/2010 17:11

good info on this thread. DS has weekend respite Fri-Mon, so I'm assuming this counts as two days?

2shoes - DS's respite home told me on Friday that several young people are leaving in January as they are now 18, so I'm not sure why you were told they had no places!! Counts in your favour though...hopefully.

I've always been under the impression that if a child has ANY overnight stays, they are a 'looked after child' and have to have LAC reviews. It's just a catch-all term where they haven't bothered to distinguish between respite and care (because our we're not worth it). Maybe your DD hasn't come under this legislation because she's had respite at school...?

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sarah293 · 15/11/2010 17:18

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2shoes · 15/11/2010 17:31

(DD i think they most likely have a waiting list)

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Davros · 15/11/2010 18:32

I have to agree with Smalltownmum. DS fist had 1 weekend per month respite and was classified as LAC. I had no idea what it was or why. In fact, they didn't need to classify him as LAC it was just their policy. I am so glad they did as I feel it has brought only benefits and hopefully will bring more as he gets older. He is now 15 and in 44 week pa residential school. I like the LAC reviews and the responsibilities it places on the LA, we still have Parental Responsibility, there is no question of that. A lot of the kids at his school are not LAC and many LAs try to dissuade parents from requesting or pushing for it as it means they have to do more and there are more rights once they reach adulthood. I don't have the time or energy to be offended if it works for us and bring benefits, I realise that may not be the same for everyone. I also feel there is ongoing endorsement of our parenting and decision making as they have every opportunity to challenge it, instead they support and facilitate it.