My 15 month old has hypotonia and we still don't know what the underlying cause is.
To brief you on him, he was full term but came out with the cord around his neck but was brought round after a brew breaths.
He had trouble from day 1 latching on and feeding from me and he's now below the 0.4th on the centile graph.
He cannot hold his head for very long, doesn't roll/sit and his arms are so weak that tummy time is spent with him face planting the floor.
We have a physio who comes to see him maybe every 6 - 8 weeks but I feel there is more we can be doing for him.
Physio says that we're doing everything that we can for now, but I can't help feeling like we could be doing more.
Is it worth looking into private physio?
Does anybody have any exercises they can recommend?
He's had MRI scans, EEGs and every blood test available but everything comes back clear.
Genetics have just got involved but they're having to have a stab in the dark because there's nothing obviously wrong with him.
He's in total proportion and really healthy looking, for a 6 month-old...but he's 15 months.
Anybody else been in a similar situation?
Please or to access all these features
Please
or
to access all these features
This forum is for Mumsnetters to discuss undiagnosed illness.
SN undiagnosed genetic conditions
Hypotonia - Physio?
5 replies
Clg86 · 26/05/2019 04:10
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.