I have D's nearly 4. We had a few tests this week at Guy's in London where it was confirmed he has a genetic condition but we are not sure which one. He needs more tests..
I've told a few friends but now stopped as I'm going to scream at the next person who says how sorry they are for us, or how you can hardly tell to look at him and he's such a happy chap!!!!
When explaining to people what do you say is wrong....I don't want to say he's I'll as he's not in that sense. But he is different so I never know what the right term is??
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SN undiagnosed genetic conditions
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Notmydolly · 21/08/2016 08:12
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