7mo with eczema - slee deprivation making me ill

(14 Posts)
Newmummyinlockdown Wed 23-Sep-20 02:39:31

Hi all,
My baby is nearly 7mo. Sleep has always been terrible, getting worse and worse. We are now at the point where he will go to sleep at 7ish, wake up at 10, and take 4-5 hours to get back to sleep. Crying, writhing, coughing etc. His naps are also terrible.

Over the months I’ve tried everything. Cosleeping, cry it out, controlled crying, sleep consultants, sleep courses, strict routine, no routine, constant bf. He just won’t go back to sleep. The only thing that helped was controlled crying got us to a point where, perhaps 50% of the times, he will self soothe for naps, which was a big improvement. The rest of the time is still shushing and rocking.

I’m really on my knees at this point. I’m so worried about his lack of sleep. He has probably slept maybe 7-8 hours in every 24 hours for the past three months. I’ve probably slept 3 hours of broken sleep for 7 months, I often feel like I can’t get through the day due to tiredness. I’m taking antidepressants, but I know I’m not actually depressed - just exhausted.

He is exclusively breastfed, sometimes with a bottle. He has severe eczema, itching and scratching all the time. We use steroids and scratch mitts, Body bandages, calpol and piriton often. I have honestly tried every cream and regime there is. He is under the care of dermatology who have suggested there is very little else we can do. I know he is uncomfortable and in pain but there’s nothing else I can do to help him. He also has severe food allergies. We’ve had skin prick tests with his specialist allergy paediatrician and he came back as allergic to: Dairy, eggs, oats, wheat (all severe), rice, fish, maize and peanuts. This means there is very little I can wean him on, and many of the new foods I’ve tried (like avocado) he has also reacted to. It also means there is very little that I can eat due to EBF. I consider myself fortunate that he is relatively well and I feel terrible even complaining about this.

It’s now 3am and he has been up crying since 10pm, he settles when I hold him but rubbing and scratching his head a lot.

Please, I don’t know what else to do. Even just some words of comfort would help x

OP’s posts: |
Susannahmoody Wed 23-Sep-20 02:41:55

Get further tests from the doctor. Insist. Take pictures and do a food diary. Has he had protopic?

Can he move onto soy formula?

Utter sympathy 💐

Diddumz Wed 23-Sep-20 02:47:59

So sorry thanks

It's the pits.

swisherfisher Wed 23-Sep-20 03:18:48

You need to move onto formula. The correct anti allergy one for him.

Then at the very least you can eat an unrestricted diet and get someone else to help.

Newmummyinlockdown Wed 23-Sep-20 08:02:14

Thank you all. We’ve tried him on alfamino - the only suitable formula. He absolutely refuses despite persisting with it for weeks. The paediatrician said many babies won’t drink it because it does smell and taste awful.

I’ve asked for protopic but it’s not licensed for babies under 2 years old so they won’t prescribe it.

I do keep a food diary - sometimes the problem is knowing what is an eczema rash and what is an allergy rash as his eczema is all over and it causes him to itch too.

I will email again for some more testing possibly x

OP’s posts: |
InDubiousBattle Wed 23-Sep-20 08:07:05

Are you in England op? My ds was definitely under 2 when he had ProTopic and it completely cleared his eczema up. Total game changer for us.

Newmummyinlockdown Wed 23-Sep-20 14:29:28

Thanks. Yea I’m UK. I begged the dermatologist for it but they refused - I’ve heard some will prescribe it and some won’t. I’ll keep trying! Thank you x

OP’s posts: |

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Dillybear Thu 24-Sep-20 08:00:09

I am so so sorry OP, it sounds like an utter nightmare. I don’t really have much advice for you, I just felt I should reply. My DD, same age, has eczema/very dry skin. She used to be all red and flaky all over after every nap/when she woke in the morning. I do use steroid cream in the typical places (backs of knees/elbows etc.) but I’ve seen a massive improvement from using cerave moisturising lotion. I recommended it to a friend whose baby also has eczema and she has also seen a significant improvement. From what I understand, the cream replenishes and feeds the skin with ceramides and hyaluronic acid, rather than just being a barrier cream. This wasn’t recommended by doctors, but by an aesthetician. It’s worked wonders for DD- her skin has gone from being rough, cracked, dry, flaky, and red, to smooth and soft. I use it multiple times a day (though now using it less as her skin has improved so much) as well as before bed, and I ‘lock it in’ with emollient on top before bed. Your DS’s eczema sounds like it might be much more serious, so you’ll know if this might be helpful for him. I just wanted to suggest it on the off chance it could help. flowers you sound like an amazing mum. Really hope it gets better for both of you.

Dillybear Thu 24-Sep-20 08:08:31

Also we stopped using regular laundry detergent and that helped too. I use an unscented eco egg now. You’ve probably done all of this already though so please do just ignore me!

Newmummyinlockdown Thu 24-Sep-20 23:46:21

Dillybear- thank you so much for your reply. I will try that moisturiser. Was it a specific one? We started using Surcare detergent with an extra rinse so hopefully that’s gentle on his skin x

OP’s posts: |
Hannsmum Fri 25-Sep-20 00:04:27

So sorry Op.i feel for you.

Have you tried adding probiotics to your diet or giving him baby probiotics?

Like mayb sprinkling it on your boob before he drinks..

Mayb go a natural route

Big hugs

Dillybear Fri 25-Sep-20 22:59:28

@Newmummyinlockdown no problem. This is what I bought (I don’t know how to do a link) - www.amazon.co.uk/CeraVe-Moisturising-Lotion-236-ml/dp/B07CG2TD9F?tag=mumsnetforu03-21

Your baby’s eczema sounds very serious and the cream may not help, but it’s made such a difference for us I just didn’t want to mention it in case it helps! If it does, I’d love to know. I absolutely know the desperation where you’ll try anything to help them. I really do feel for you.

Dillybear Fri 25-Sep-20 23:01:07

Urgh. I didn’t want to not mention it, in case it helps! My DD’s skin is much better but her sleep is still rubbish so I am tired! grin

fabulous01 Fri 25-Sep-20 23:07:29

We got referred via the health visitor.
The consultant was amazing. She said the GP prescriptions were like "pissing in the wind..."

We got medicines and creams. It was fantastic and I noticed the difference in days

For the formula we also got referred and hit special stuff. Again referred via the health visitor. I thought the screaming was normal....

The change in weather is awful for eczema so I really send you hugs. It was an awful time

Good luck and push for appropriate treatment

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