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Fatal Familial Insomnia

(2 Posts)
TohnoE Mon 20-May-13 17:47:50

My DM had F.F.I and died when I was a child. I have not developed it however there is still a chance. A few in my family have had it and I wake up many nights, terrified that one of my 3 DD's will have it. They are still young and symptoms do not appear until you are older. My DH doesn't seem to have the same fear that I do and I am starting to think that I am crazy, worrying about something that will probably not happen.

seriouslysleepdeprived Mon 20-May-13 18:07:14

I'm very sorry about your DM, it must have been very hard for you. Have you spoken to your GP about this? They may be able to send you to a genetic counsellor who can help you with your anxieties and testing if that's what you decide.

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