I just need to let this out somewhere.
My life feels like it's literally holding on by a thread at the moment. Our son aged 3 is going through assessment for autism and developmental delay and my dh and I are literally struggling to hold everything together emotionally. Things are so stressful. My dh has a very demanding job and he is so stressed with the whole situation with ds he keeps making lots of relatively minor mistakes at work but because of the nature of his job he is terrified he is going to get the sack.
We have an older child aged 12 who I am desperately trying to keep an air of "normal" together for, even in the midst of everything redecorating her bedroom to make her happy and trying to have days out as difficult as they are for all of us but underneath it all life is just horrendous right now.
I feel like I'm struggling along trying to do my best... I applied for dla for ds, which we were awarded highest rate for and carers allowance for me which has made things easier financially but there are no support groups in our area. We are on the waiting list for ds to see the paediatrician (probably August- I've rung and that's the earliest they can say!) I've contracted the school he's starting pre school at in sept and they've been very good and arranged 1 to 1 support for him and also SALT.
Most of the days are just ds and I and I try to do things with him everyday but he can't go to toddler groups as he can be quite aggressive and possessive and doesn't know how to share and has no interest in anything. He doesn't even seem to care if dh or I are there, he is just stuck in his own little world. He doesn't play with anything, hardly speaks and has huge meltdowns which make it very difficult for us to do anything or go anywhere. I feel like a prisoner in my own home as he is so routine led and if he doesn't have his nap for 2 hours a day in the cot at home in the dark all hell breaks loose.
I've applied for a holiday voucher from family fund and I was all optimistic about it but now I'm feeling like it's all a pipe dream and how on earth are we even going to manage ds for a holiday in a strange environment (even a caravan is a strange environment) and without all the comforts of home.
Feeling so low and so worried about everything. The future.... dhs job... ds... I don't know what the fuck I'm doing half the time or how to get ds to interact with me. I've Googled every group and charity I cab and watched enough you tube videos to send my eyes square.
Just so lost :( .
I've posted on the special needs boards before but I can't keep up with the general threads and I wanted to start my own in a more general area.
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My family is falling apart (severe autism / disability of child related).
Fairylea · 03/06/2015 14:06
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