My twins were only slightly prem at 35 weeks, and I was very fortunate to only spend a couple of days in SCBU. (a fortnight in transitional care but thats a whole other story). I have only touched the world of SCBU and can't imagine what a lot of you parents and your babies (as well as the whole families) have had to go through. Hats off to you, I hope life becomes easier soon.
twin boys (my blond monsters!) were born at 31 + 1 weeks. after my waters went at 25 + 3 weeks. In scbu for 5 weeks. Now are 18 months old and an absolute delight! They are completely corrected in terms of development.
We did have some worries when they were little, one had flat head syndrome and a bleed on the brain and had 2 MRI's (we've been told he may have some learning difficulties later on and may not reach his milestones as quickly as his brother, but luckily so far no evidence of that!) and the other had a positive Guthery test for CF which luckily turned out to be a false positive, but it took 3 more tests and 9 months to get the all clear.
But to look at them now you would never know (as the athlete songs goes!). We have been very lucky to keep in touch with some other families we met in scbu and it is lovely seeing these babies develop. Good luck toall other families out there!