Anybody had a good outcome from hydrops and polyhydraminos?

(6 Posts)
Alb1 Wed 27-Apr-16 22:48:56

Don't no if I'm posting in the right place really. 35 weeks and found out to my complete surprise today that baby is incredibly unwell, insanely high heart rate, loads of excess fluid around her and in her. Having treatment now but everyone has said this is very rare so they can't help with what the outcome might be. Has anyone had a similar problem? Or even just a very poorly baby that made it through? Everything else has been so risk I just didn't see this coming

Esmeismyhero Thu 28-Apr-16 07:48:31

I had poly with my son, he needed resus when born but after that he was fine, he was monitored and now is a happy healthy mouthy 5 year old.

My daughter was also born with abnormalities and again is a healthy 4 year old.

They have caught the poly and you'll be monitored so try not to stress too much.

flowers for you X

Alb1 Thu 28-Apr-16 07:52:36

Thanks, she's quite unwell and is also in pretty bad heart failure so there trying to fix that first, it all sounds so bleak! They said 80% of babies with hydrops die and were not even at treating that yet sad

Alb1 Thu 28-Apr-16 16:17:10

Just bumping incase anyone else is around...

idontlikealdi Thu 28-Apr-16 17:19:54

I had poly due to other complications in my twin pregnancy. I had 5l syringed off. Dt1 was in heart failure when they did it.

They are both absolutely fine.

Bit different to your situation but didn't want to leave your post unanswered.

thanks hope it all works out well

foreverblessedbee Thu 28-Apr-16 17:45:15

Alb1....Hi there. I feel for you so much. I thought it might be helpful to share a little of my experiences. I had severe polyhydramnious with my eldest child. We were told he had a problem with either his swallowing or passing urine. Paediatrician at delivery and baby went to resuitation and had a tube passed to check his swallowing. He was absolutely fine😃 in fact he's now 8 years old and stretching my patience as I type!!!
The other experience I wanted to share is different to your own but I do feel it may encourage you. My third pregnancy was fraught as at 20 weeks a serious heart condition was detected and markers f suggestive of Edwards Syndrome were picked up. I was advised to terminate. At best I was told that if my baby survived to giving birth stage it was unlikely he would live past a few hours .. if he did not have Edwards syndrome he would need open heart surgery to correct transposition of the greater arteries (TGA). Again we were advised to terminate.
Fast forward and my ds3 is now almost 2 years old😃😄😊 He does not have Edwards syndrome.... he did however spend the first 4 months of his life in intensive care and underwent 8 major surgeries within the first 3 months of his life. He was so poorly.... but he made it. He's here and he's alive. Despite everything the Dr's said. Despite their advice to terminate. Despite the fact we were told many times in hospital that we may never take our baby home.
He still has many challenges and also has a pacemaker which he will need for life which was fitted at 16 days old.
But please op- be encouraged. Please don't lose heart.
Miracles do happen xxxxxxx

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