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Currently in NICU with 1lb 25wk very sick baby boy.

(675 Posts)
Supershiv1 Tue 23-Apr-13 10:57:01

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

thomasmad Mon 11-Nov-13 11:34:18

Hi Shiv and family,
So delighted for you!! I haven't been able to track him down on Facebook as I don't use it and am a bit of a technophobe!! but it sounds like he is doing brilliantly. Hope you get some time to really enjoy Oliver and spend normal time together doing all the things that other people take for granted. Here's to hoping for a fantastic Christmas together and a less stressful winter. Take care xxxx

hedwig2001 Mon 11-Nov-13 14:59:57

Hi Shiv, long time lurker popping in to say congratulations.
If you have an android phone or tablet you might find this app useful for managing Oliver's meds.
It reminds you when drugs are due and can monitor your supplies, so you know when to get a new prescription.

5madthings Mon 11-Nov-13 15:02:45

Whoop whoop! Longtime lurker here, have been thinking of you and Oliver often, so glad he is coming home! grin

Best early Xmas present ever!

Silver15 Mon 11-Nov-13 22:04:15

Great news Shiv. Wish you, mr shiv and Oliver the best.

MyMotherHadMeTested Tue 12-Nov-13 21:19:31

Wow congratulations, hope all is well in the Shiv household!

kaymondo Tue 12-Nov-13 21:58:35

Just found this thread as it popped up in active conversations. Amazing story, had me in tears and I'm so so pleased for you that Oliver is home. X

TwentyTinyToes Tue 19-Nov-13 20:00:46

So pleased to read your latest updates. Go Oliver - what a superstar grin

chocolatesolveseverything Thu 21-Nov-13 08:12:36

Brilliant news about Oliver. I hope you settle down into a happy family routine soon.

carovioletfizz Thu 21-Nov-13 09:35:11

Have followed this thread shiv, so happy for you you have your wee boy home smile have sent a request on fb btw (Caroline) xx

MultipleMama Tue 26-Nov-13 14:11:16

Decided to stop being a lurker and comment. Rereading you're thread has gave me hope for my little boy.

Congrats on having, Oli home. Hope everything is well, and you're enjoying home life! xx

Supershiv1 Wed 27-Nov-13 23:19:05

Hi multiple, I lurk on your thread too xx

Djwkin Sat 14-Dec-13 12:48:15

How is Oliver doing now?

Supershiv1 Mon 30-Dec-13 22:01:54

yes all good. Feeding isn't great and trying to wean him so we can increase his calorie intake (happening very slowly).
In 2 weeks he'll be 9 months old.
3 days ago he should only have been 5 months xx

HappySmileyFace Fri 03-Jan-14 11:19:33

So happy to catch up on your thread and see what great progress Oliver has made! Woooo hoooo!

thomasmad Fri 10-Jan-14 23:21:41

Hi Shiv,
Have been thinking about you and your family and hoping you have enjoyed a great first Christmas. My boys were 28 weekers so further on than Oliver but they did suffer from terrible reflux ( 4 x 2 changes of clothes a day!!) so I do know about the trials and errors of feeding. I weaned early and shut up all the people with "helpful advice" by stating quite truthfully that it was on the advice of our Paeditrician. Strangely enough they are the heartiest eaters four and a half years on and are much less "fussy" than my eldest one, so every cloud ...
Hope Oliver continues to do well and that you all have a very positive start to 2014. Well done!!!

Supershiv1 Fri 02-May-14 22:33:29

Guess who was a year old a few weeks ago??? ��

GimmeDaBoobehz Fri 02-May-14 22:40:10

I know you are a long way into this but just to say my partner was 1lb and a 24 week old baby and although in hospital for 4 months he's a strapping 27 year old now with a little girl so there are many happy endings.

Wishing you and your son the best smile

GimmeDaBoobehz Fri 02-May-14 22:42:23

Just seen he is a year old now amazing DD is 13 months next week so close in age.

So glad for you that it turned out well .

MichaelFinnigan Fri 02-May-14 22:50:14

WOW! Congratulations! I commented. On this thread under a different name and have often thought of you.

Well done to you and your family, what a roller coaster. I wish you every health and happiness for the future smile

Valdeeves Sat 03-May-14 00:18:42

Hi Supershiv all I was going to add on this thread was my friend had a baby the same weight and she's doing brilliantly now. Looks like things are going well for you too xxx

HappySmileyFace Sat 03-May-14 00:21:22

I have wondered how you are all doing! Happy 1st birthday!

TheMightyMing Sat 03-May-14 00:27:18

No way!!! It's all coming back!!! Give us an update please!!!! Xxxxx

Supershiv1 Tue 06-May-14 20:50:09

All going well.
Had the usual coughs and colds, but today we got a call from Oliver's consultant to say he Could come off oxygen......for good. Yippeeeeee!

I do update the Facebook group regularly if you want to see? It's Oliver's Army and has around 220 members. Xx

MultipleMama Tue 13-May-14 22:27:17

That's brilliant, Shiv! So pleased and very glad to see your boy fighting strong! X

Nottinghill1 Tue 08-Jul-14 23:22:22

How's the little man doing now?!!!

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