Firstly I cannot believe I am even having to contemplate. I am currently 21+3 pregnant with a very wanted and loved second pregnancy. All hell broke loose on Monday at my 20 week scan- baby has a major heart defect and she queried increased nuchal and slight rotation of the ankles. I have since seen a fetal cardiologist who diagnosed a complete AVSD probably with tetralogy of fallot. We have a 80% chance of this being due to Downs, although in my heart I know it is.
I am awaiting the harmony test and will have an amnio done with the fetal medical team on Thursday.
Once chromosomal syndrome is confirmed we are 90% we are not going to proceed with the pregnancy. This is due to our belief that the baby will not have a good quality of life and the road ahead is too uncertain and full of pain and suffering.
Has anyone any experience of a late term abortion? I live in NI so will have to travel and die to the laws here no medical professional has discussed this with me so far.
Thanks
Pregnancy choices
Termination around 24 weeks
CherryO88 · 19/08/2018 20:28
ante natal results choices help
Sorry OP I didn’t want to read and run, I’ve no personal experience but found this helpline that have the information you need.
I’m so sorry 
Oh my love
No advice at all but reaching out to you with a handhold. I can’t imagine what you’re going through but sending love and strength.
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OP I have no advice but hope this bumps things for you
I'm so so sorry
Handhold OP- I’m in NI as well and it’s shameful that you can’t get treatment and support at home.
If you need practical help, I’ve heard that the Alliance for Choice can offer advice and support navigating the arrangements.
It's not just Down's mum, it's a severe heart defect which will likely involve multiple surgeries on a poorly, very little baby who has severe learning disabilities and problems with its feet. Not sure how you missed that tbh 
Don't talk like it's a simple as deciding not to have a Down's child.
Just wishing you all the best and hope that if you have to make this choice that the process runs smoothly for you.
I’m so sorry. I terminated a pregnancy earlier this year due to downs, but at 14 weeks so not as far along as you. I’m so so sorry. We felt that we couldn’t do it and the medical professionals were all very supportive. I am so sorry you only found out so late being in NI. As the other poster said ARC are a good source of information. Be kind to yourself, take time to grieve and heal. I found the days before the termination the worst. Once it was over I healed quickly and there was a marked change in my mood and general demeanour once my hormones went back to normal (a few days later). For us, holding on to the fact that we 100% Made the right decision for us has really helped. I would also advise only discussing with carefully selected
Friend and family. Most were understanding but some shocked me by saying, “I could never have done that”. I just replied that I used to feel like that but it’s different when you’re in the situation.
All the best to you and sending kind thoughts and
@Mum2jenny Suggest you go back and read the OP properly.
@CherryO88 I have no practical advice, but I'm so so sorry that you're in this situation. Do you have people to talk to in RL? Sending love and strength
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sorry you are going through this.
I had a tfmr for t21 and heart problems too. I found ARC really helpful.
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Please ignore anyone commenting on whether or not they would terminate. OP hasn't asked for any help to make this decision, just support as she goes through it
Yes. OP wishing you lots of love and strength.
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