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PGP/SPD - "nothing we can do"?

(10 Posts)
ChasingButterflies Thu 10-Sep-09 10:15:23

Am 33wks pg with dc2, have severe SPD (or PGP as it's called these days), as I did with 1st pg. I have joint problems and chronic pain anyway (hypermobility syndrome) but the pain levels and mobility issues are much worsened in pg.
Last time round I had v good physio at the hospital where I have all my antenatal care, and for 6mo after the birth (elective cs due to mobility restrictions). This time has been disastrous. I was referred to physio at my booking-in appt but didn't get an appointment for 3 months, by which time I was already in severe pain. I then had about 6wks of treatment from a brilliant, hands-on physio - who then left for another job.
Ok, that can't be helped, but there was no replacement obstetric physio. I had to wait over a month before getting another appt with a physio who clearly isn't an obs specialist (plus she asked me in our first - and so far only - appt what causes my hypermobility! Which should be pretty basic for a physio). Anyway, she told me there was nothing she could do for PGP, I'd just need to wait to deliver the baby. She didn't examine me at all. She did advise me to find a hydrotherapy pool for some pain relief - having searched fruitlessly for one near me, I've now just discovered that the physio department has one!
To top it all, having been promised that, despite her uselessness, I could have the "next available appointment" to see her again, I waited two weeks for the letter, rang last week to check and nothing has been booked. Now the "next available appointment" is the week my baby is due!

So, two questions (sorry this is so long!)
1/ it's not true that there's nothing they can do, is it? Anyone know of any official guidance for physios?
2/ should I complain to the hospital?

TIA

ChasingButterflies Thu 10-Sep-09 17:21:34

Bump

LilRedWG Thu 10-Sep-09 17:23:58

TBH your physio sounds exactly the same as the one I had during pregnancy.

A chiropractor I saw post-birth said that chiro treatment during pregnancy can help realign things.

Good luck.

barnowl Thu 10-Sep-09 17:35:57

I have PGP and I have had lots of physio they have re-alingned my pelvis and loosened the muscles that had tightened to compensate for the movement and my pain is much better. I still need crutches to walk any distance. There is a good website that supports people with the condition and they should be able to give you advice on your situation. it's called www.pelvicpartnership.org.uk

notjustapuppymum Thu 10-Sep-09 17:56:49

Unfortunately with our NHS system you sometimes have to help yourself - chiropractic and osteopathy are great options for SPD/PGP.

stubbyfingers Thu 10-Sep-09 18:01:05

I had great success with chiro and would recommend. smile

ChasingButterflies Thu 10-Sep-09 20:18:36

Thanks all - unfortunately I can't have chiropractic as I have very unstable joints and that sort of manipulation is really bad for them (have tried it in the past before I was properly diagnosed). Just feel quite desperate now as baby is fast approaching...
I wish I had something I could show the physio to say: there, this is what you should be doing to help me!

notjustapuppymum Thu 10-Sep-09 20:27:09

Can you not have osteo either? It's even gentler than chiro. I highly recommend osteo for SPD.

tasmaniandevilchaser Thu 10-Sep-09 20:31:01

Hi there, I had acupuncture for my PGP, it was the only thing that reduced the pain so I could get moving again. I would really recommmend it, but understand it's not for everyone (esp as not cheap)

Sorry not answering your questions! My physio just gave me exercises, but then it wasn't as bad as yours.

Hope you get some help soon

stubbyfingers Fri 11-Sep-09 10:16:13

The chiro I had for SPD involved a very gentle knock on the front of my pubic area and some other very gentle manipulations - nothing violent! I suppose everyone's body works differently but if you're desperate it might be worth having a discussion as chiro in pregnancy is very cautious and specialised.

I really hope you find something to help you as I know it's horrible!

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