Hi all
I have Factor V Lieden, with protein S deficiency. I have 2 children, a boy aged 4, and a girl aged 3. When i was pregnant with my son, i was put on 75mg of Aspirin a day. With my daughter, they decided to put me on clexane 20mgs every day. I would like to take this moment to share my nightmare experience with clexane.
I was placed on clexane at 12 weeks, and was injecting in the leg, and it stung like crazy, i also developed these hard lumps under the injection site, which became itchy and bruised. At 16 weeks, i had this extraordinary stabbing pain in my left side, felt a bit like cramp, and trapped wind. about 2 hours later i started to bleed, and not just spotting, it was pouring out from me, like a heavy period. I was rushed to hospital, where they said i was having a suspected miscarriage. But on the scans the baby was fine, no signs of bleeding inside the womb, and the umbilical cord blood flow was normal. They kept me in over night to observe my bleeding, checked baby's heart beat, and everything was fine, but they did not know where i was bleeding from. The hospital sent me home, and this bleeding continued for a month, like a normal period, but lasted for a month. My mum suggested that it might be the clexane causing the bleeding, so she said stop taking it, so i did, and surprise surprise the bleeding stopped, i tried to tell my specialist this, but he got annoyed with me, and demanded that i continue taking it, and clexane doesn't course these side effects. So i started to take it again, and the bleeding started up, but it seemed as though the hospital was not interested, because they couldn't figure out where the bleeding was coming from. Eventually the bleeding stopped, and i continued to have a normal pregnancy. When it came to the point of me loosing my plug, before my waters broke at 38 weeks, it wasn't your normal plug, it was a huge blood clot, looked like a small liver. I went to hospital, and they looked at it, but couldn't give me answer. They wouldn't keep me in, and i went home. The following day, my waters broke, and gave birth to my daughter who is now 3. Another thing was that when she was born, they told me she had downs syndrome, this was not picked up in the scans, and i had the tests as well. I was shocked, because i was only 23. Then came the breast feeding, i didn't have enough milk, my breasts weren't swelling, and they didn't feel gorged with milk. I had to switch to formula. I believe this was down to the clexane, as i mentioned before, i was only on aspirin on my first pregnancy, and that was a normal healthy one, my son was born at 8lbs 14Oz. My daughter on the other hand was only 6lbs 5Oz. I am now 6 weeks pregnant again, and i am on 75mg of aspirin, I refuse to go back on the clexane, I just don't trust it. Has anyone else had a similar experience with clexane, whether it be bleeding, small birth weight, defects, or breast milk?
Sorry to rant on, but the professionals won't listen
Thanks for reading. xx
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Bad experience with clexane!!!!
22 replies
emilysarcos · 06/02/2009 20:51
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