Hi all, this is pretty niche I guess but I'm struggling to find advice and would really appreciate any thoughts!
A couple of weeks ago my MW did a blood test - said it was for "iron levels and to check for antibodies". I am Rhesus negative BUT had a blood test already which has confirmed baby is ALSO Rhesus negative, so I understood there to be no risk in this pregnancy, no need for Anti-D etc. I did mention this but she just said "this is for different antibodies" so I went with it.
She then called me to say that iron levels were fine but the antibody test was positive - there is a risk to baby of having rhesus disease, aka haemolytic disease of the newborn. She told me I'd be hearing from the consultant and there'd be more frequent monitoring to ensure the antibodies weren't harming baby. However, she is now on leave and I've just had a letter from the consultants saying I'll be seen on December 8th - which feels like a long time to wait for "frequent monitoring", especially with no information!
I'm massively confused since EVERYTHING I can find online says this can only happen with Rhesus negative mums and Rhesus positive babies (e.g. here www.nhs.uk/conditions/rhesus-disease/) which I've been told isn't my situation.
I don't have contact info for the consultant's secretary, so I've called maternity triage - they were patient & sympathetic but just said that they don't know anything and to trust the consultant's judgement... I'm just really aware that antibodies attacking the baby in utero can be really serious and it feels worrying not to understand what's going on and to have so long to wait to find out.
A potential complicating factor is that I have Hashimoto's so I'm not sure if it's my thyroid antibodies that have been detected, or if these could be hurting the baby... None of the MWs I've spoken to understand this at all, they are just happy that my thyroxine dose is keeping TSH levels in line, but no one can tell me if my antibodies are being monitored or if they could endanger the baby.
So feeling lost and scared, basically! Any advice gratefully received
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Pregnancy
31 weeks, antibody test positive but not rhesus disease - anyone had this?
14 replies
WoolyMammoth55 · 14/11/2020 16:05
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