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Molar pregnancy

(13 Posts)
Edinburgh1988 Wed 15-Jan-20 16:00:55

Hi everyone, I'm new to MN and I've looked at previous threads relating to molar pregnancies and I'm sorry for everyone else going through this. We went for our scan yesterday (13+1) only to be told there is no baby. I've had all the symptoms of pregnancy, no period, positive hpt, sore boobs, terrible sickness and nausea so we were completely rocked by the news that there's never been a baby. I'm scheduled for surgery tomorrow to remove the bad cells and we've been up and down with our emotions as you can imagine. I'm trying to be positive and know that we will be able to start trying again (albeit not for another 6 months) but it took us a year to "conceive" and it's really tough trying to deal with the fact we won't be welcoming a bundle of joy afterall. We've had so much support from all our friends and family which has made so much difference but I'm just looking for someone else to tell me how they coped with all this. I especially would like to know how quickly the sickness and nausea will go away. it's been dehabilitating and I've been off work for two weeks assuming I was just dealing with bad MS. I don't think I'll be able to deal emotionally until I start feeling better with the sickness. Can anyone advise?

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Southy84 Wed 15-Jan-20 16:24:16

Hi @Edinburgh1988 my first pregnancy I got to my 12 week scan and was told there was no baby, they thought that it had stopped growing at approx 6 weeks but they couldn’t be sure, I think deep down I knew something was wrong as I just didn’t feel pregnant anymore, I opted for the tablet/pessary at the time as i didn’t want the operation. It wasn’t too awful and I recovered quickly physically, emotionally took quite a bit longer though. At that point I didn’t actually feel pregnant so im so sorry I can’t advise how long you’re likely to still feel Sick for, I would have thought after the operation your hcg levels will decrease fairly quickly but I know this varies person to person. I hope that you start feeling better soon.

Sadly I have just had another mmc, the baby’s heartbeat stopped at 9 and a half weeks, found at 11 and a half week scan (only because I recognised the signs and knew something was wrong and booked a private scan) I’m also booked in for surgery tomorrow, I have no idea what to expect but I’m feeling so nervous. Just wanted to say you’re not alone tomorrow. The only thing I would say is don’t rush trying to feel “normal” again, even now if I talk about my first mc I cry, it’s normal to feel emotional and to take time to heal from it all. I think the hardest thing for me was believing there would be a baby and thinking there was a baby growing for 3 months when in fact there wasn’t, It’s completely awful and you aren’t alone, sending hugs your way and thinking of you tomorrow. I’m glad you have a good support network around you too x

Edinburgh1988 Wed 15-Jan-20 18:22:08

Hi @southby84
I'm so sorry you're experiencing the same thing again. This is my first pregnancy and it's been hard enough but to think it could happen again is just heartbreaking so my thoughts are with you. I hope tomorrow goes as well as it can for you.
There's still a part of me that thinks they've made a mistake and I'm half expecting them to tell me in the morning that they've got it all wrong and there is a baby afterall. I know it's not good for my sanity to think like that but I feel like that's why emotionally it hasn't really connected yet. Just feel like the waiting to go in is a little like being in limbo. I still feel completely pregnant so it's just hard to accept that I never have been. I'm glad I'm not alone in that feeling but also sad that you're also feeling this way.
Try not to be too nervous for tomorrow. We'll both be in the best of hands and will have the best care possible. I hope you have a good support network too?

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Edinburgh1988 Wed 15-Jan-20 18:22:46

Sorry, got your name wrong @southy84

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JuniLoolaPalooza Wed 15-Jan-20 18:30:09

Hey OP,
I'm so sorry for what you're going through. I had a molar in 2012 and remember this limbo period between diagnosis and surgery very well.
This website molarpregnancy.co.uk/ and the forums (if they are still going) were an incredible source of support and knowledge and I'm still in touch with a few of the women I met there.
Just try to take it day by day, once you've had the operation the pregnancy symptoms will fade in a couple of days. Take it easy after the op.
I found it very hard, particularly as no one could give me a reason why it had happened, and I felt very isolated for a long time. It took another year of TTC after all clear to conceive DD, one of the hardest times of my life! But I now have my two DC, it will be ok x

Blahblahblahnanana Wed 15-Jan-20 18:34:30

Try this forum for support molarpregnancy.co.uk/

I had something similar. The symptoms of pregnancy won’t unfortunately subside until your HCG levels drop, and you will also need to regular blood or urine tests for at least six months after treatment, to check that your HCG levels stay at a non pregnant level.

www.nhs.uk/conditions/molar-pregnancy/

Southy84 Wed 15-Jan-20 19:32:47

@Edinburgh1988 I have had two children since the first mmc, I know it’s not exactly the same as a molar pregnancy but don’t give up hope that you will conceive again and that the next time will likely be ok (hard I know and I’m sure it will be a very anxious time, I feel like the I’m the most anxious person ever now). I think it’s completely normal to hope they have got it wrong, I stared at the screen and know with all my heart and head that there was no heartbeat but I have had moments of thinking the same as you, it’s just so cruel to get so far and believe you’re through the first trimester to have it torn away. I’m sorry you still feel pregnant, that must be making it so much harder for you to process, hopefully after tomorrow you will start feeling better as each day passes.

I have a amazing support thank you, I am trying not to block people out (I did that the first time and it did me no favours at all, I think that’s one of the reasons I didn’t cope well emotionally because I didn’t tell anyone how I felt).
I’ll be thinking of you tomorrow

jadelouiselaird Thu 16-Jan-20 10:17:24

I had a molar pregnancy 6 years ago, however i didnt find out it was a molar pregnancy till a couple of months later. I had the surgery as well as regular urine/blood tests.

It is very difficult to deal with and feel your pain, just take all the time you need. The sickness should go away pretty soon if i remember rightly.

Edinburgh1988 Thu 19-Mar-20 13:11:56

Hi everyone,
Just thought I'd update for anyone else who might be experiencing something similar. So the surgery made a huge difference to my sickness levels and the nausea was gone as soon as I woke up which was a huge relief.
Unfortunately my journey hasn't ended with the surgery and subsequent follow up. My first blood test results after the surgery revealed that my HCG levels hadn't dropped as much as expected and I was referred to Charing Cross Hospital. I spent a week in the hospital having chemotherapy (methotrexate). I live in Edinburgh so it wasn't the best experience being away from home. I'm home now though and am able to continue my treatment in Edinburgh. I've just finished my 2nd cycle of chemo and have a horrible cough that started two weeks ago. I've been tested for Covid 19 and it was negative and all the docs can tell me atm is I have an unidentified virus. I'm starting to worry that the cough is a result of the chemo so am trying to arrange an appointment with a doctor. unfortunately life is tough atm as I'm scared to leave home as I'm worried if I do pick up Covid 19 I'm now in the "vulnerable" group.
It's been a very difficult few months and I don't think I've really taken anything in properly. Thankfully the chemo is working :-) my Hcg levels have dropped significantly so there is light at the end of the tunnel! Let's just hope the world becomes a better place in the weeks/months to come :-)
Love to everyone!
xx

OP’s posts: |
Sulkypatsy Thu 19-Mar-20 13:39:47

Edinburgh, it's amazing that you are heading in the right direction with your health. I really hope that you get the card that you need to heal and continue to improve. I'm so sorry for all that you've been going through. It's a real credit to you that you have love to pass onto strangers online.

Iheardit Thu 19-Mar-20 14:55:59

Hey, I had a molar 10 years ago. I also had chemo (ema-co) after methotrexate failed. The website linked was a life saver. If you are struggling contacting your doctor speak to the lovely ladies in the molar office at Charing Cross. I had terrible side effects from the methotrexate injections, and if my memory serves me right they helped me get hold of a consultant to discuss the horrible effects.

Look after your self

Hopewills24 Wed 02-Sep-20 18:01:05

Hello. First time posting on MN. So sorry for anyone who is going through or gone through a molar pregnancy. It's beyond awful.

We found out at a 7 week scan (that we had due to spotting not thinking really anything would be wrong after seeing "spotting is normal" everywhere) that there was no baby in the sac and that it was a suspected molar pregnancy. I've had the surgery and the surgeon said there wasn't much there whatever that means and I'm feeling physically fine with minimal bleeding 5 days later.

I've been reading posts on forums but I haven't seen any posts of this being straightforward recovery. Most people have a difficult journey after a molar yet the hospital say all these things are so rare. I suppose I was just looking for any positive stories and to vent a little bit

Hopewills24 Wed 09-Sep-20 22:31:42

Bumping 🤞

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