Hi everyone i am pregnant with my 7th baby and have just got the devastating news that my baby problay has the terminal condition anaecephaly ,i have to go to newcastle rvi next week for a more detailed scan but my consultant is quite certain of the diagnosis.I seen my consultant yesterday and he told me the radiographer had seen twins on my scan but one baby had stopped developing quite early ,as you can imagine this is a second blow and i cant understand why we wernt told this at the time.I feel more devastated than ever now as i am just not going to lose one baby i am losing two.I cant understand why i had to lose both babies and dont know how we,re going to get through the next few weeks .Once diagnosed we will have to make the worst decision of our lives and i dont know how to cope .Has anyone else here been through anything like this i will be grateful for all advice.
I have just met a lady whose little boy (6 months) has anencephaly - was diagnosed at 4 months old - not antenatally and they seem to be doing finr - a tough and worrying couple of months but she is very positive.
I hope someone will be along soon with some wiser words
Max, I am so sorry. A poster here called Katyh went through the same thing (anencephaly, not twins as far as I know)not that long ago. I have just searched and her thread is here, I don't know if it will be of any help.
anaecephaly is a neral tube defect that is related to spina bifida basically if the tube dosnt close on the bottom the baby has spina bifida if it dosnt close at the top it has anaecephaly,It is a condition incompatable with life because the brain and the top of the head just havnt formed.
I'm sorry I didn't see this earlier, and so so sorry that you find yourself in this awful situation. We lost our first baby to anencephaly in 2005, and still miss her. I hope you are as ok as can be (if that makes sense), and wanted to tell you that SANDS is a brilliant resource if you want to talk to people in the same situation (www.sandsforum.org)