I found out today nearly in 17th week pregnamcy twins....About bad t11 to sacral Spina bifida at one of our babies. And I'm scared nd concern. No one here will tell us how many cases kids or adults with this level sb actualy lives...in Ireland.even the organizations looking after SB they dont know.. it's very concerning....and terrifying...as those odds wi give as a clue. I read a lot about sacral lumbar level...but no where I can find thoraic SB... it's huge split ...and the chiari and hydro malformation already forming... clubbed feet. I'm looking for help everywhere...here and abroad... that maybe some one will have any better news meaning will be able to give us a clue how life of our little one will look. Will he be able to live...or my decision to give him a birth is selfish...As he will suffer... I'm.sorry for this dreadful thread here... But I hope some one maybe will be the light in the end of tunnel.here
...thank you in advance!
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Pregnancy
Spina Bifida T11 twin pregnancy
16 replies
poisonberry · 06/06/2018 07:49
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