My heart is totally broken, our routine 12 weeks scan on Monday flagged up that baby was missing it's right forearm and hand.
Today we had a consultant check and it's been confirmed that it's not just the right arm that's been affected it's also it's left. Baby has a small upper arm on the right and left side stops just below/on the elbow with no digits to either.
We already have two healthy boys of 5 and 2 and this blow has just totally pulled the rug from under our feet.
I've been trying to research into babies that have been born missing arms and generally I'm only coming across one arm that's affected so quality of life isn't really affected as they still have one arm and working hand to work with, how will my baby deal with the basics without!?
We've been told it's probably been caused by amniotic band syndrome and we're just unlucky that it's happened to both arms.
We were obviously given the option of ending the pregnancy which we haven't totally ruled out but for now we've put it to the back of our minds until we know what roads best to take for baby and our boys.
If anyone had experienced this I'd be so grateful either way of experiences as right now I feel like I'm the only one going through this as I just can't find anything about it anywhere with both arms and the unknown is petrifying!!
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Pregnancy
Amniotic band syndrome, missing both arms
OnToTheThird · 19/01/2018 01:29
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