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Underactive thyroid

(9 Posts)
Natalie2900 Tue 21-Mar-17 15:03:39

Hi!
I am 10 weeks pregnant tomorrow and have an underactive thyroid.
Trying to understand it a lot more now because I had a miscarriage at 10 weeks in November and never thought it may be because of my thyroid.
So I have a blood test on 1st march was told to reduce levothyroxine by 25mg had a blood test 15 th March. Doctor wanted me to reduce medication again he said my level is 1.4. I have read your level should be between 0.5 and 2.0 during first trimester so surely 1.4 is ok?
He then changed his mind and said no stay on what medication you are on now.
I asked him Out of curiosity what my levels were before my miscarriage and he said 3.4 which he said were where he wanted mine to be at now.
I'm worried he really doesn't know what he's talking about. He even admitted on the phone to me it confuses him! Now I'm terrified I'll have another miscarriage!!!!
Can anybody enlighten me on what is wrong and what is right??
This is the TSH level I'm referring to!
It confuses me sooo much! So the higher your TSH the lower your thyroid is working? So if my level was 1.4 and my doctor wanted it to go up I would increase my amount I take?
I'm am so confused! Somebody help! Xxxxx

PurpleOwl86 Tue 21-Mar-17 15:58:16

TSH means thyroid stimulating hormone. It's the thing that pokes your thyroid into making thyroxine. That means that if your thyroid is not making enough, your body is going to make more TSH, to try and get your thyroid to make more. So yes, the higher your TSH, the lower your thyroid is working.

You have then to take thyroxine to make up for the amount your thyroid is not producing. So, the more you take, the lower your TSH. By measuring your TSH (among other things), the doctors adapt your medication.

From what you just said though, neither the 1.4 nor the 3.4 is likely to have caused your miscarriage, because both are in the normal range. Some sources say that it is best in pregnancy to keep it under 3 but the NHS says under 4 (that's what the consultant said to me anyway).

If your GP doesn't understand, he should either verify with a specialist or refer you to a consultant. I was referred when I first got pregnant and was discharged back to the midwife/gp after it was verified that my levels are fine (always between 3 and 3.2).

nicky888 Tue 21-Mar-17 16:27:04

Hello ,
Your gp sounds completely clueless to be honest . First of all you should be reffered to an endocrinologist gp's have no clue about thyroid function.
During the first trimester your tsh should be kept below 2.5 . The ideal levels are between 1-2 so 1.4 is an ideal level .
It is common practice to increase thyroxine by 30-50% as soon as pregnancy is confirmed this is because the baby is taking your hormones before the placenta is formed so if you will definately need more thyroxine . If your levels are 1.4 ples do not reduce your dosage ! You are fine

nicky888 Tue 21-Mar-17 16:30:39

Take the NiCE guidelines to your gp
https://cks.nice.org.uk/hypothyroidism#!scenario:3
And i disagree with the poster above most recent guidelines say that tsh should be kept below 2.5 when pregnant and a 3.4 is too high when pregnant

Natalie2900 Tue 21-Mar-17 18:33:03

My doctor phoned me originally saying he wanted me to take less and that it was to high. I really don't think he understands.
Aslong as 1.4 is ok I'll just take what I'm taking. I'm just waiting to find out what my level was before I went down to 125mg to 150mg he said he had helped worried it was super high and damage is already done.

Natalie2900 Tue 21-Mar-17 18:33:44

Sorry meant he said going down from 150 to 125 had helped the levels.

Crunchyside Tue 21-Mar-17 18:37:15

I thought it was supposed to be under 1 during pregnancy.

Are you being seen by an endocrinologist? I think if you have thyroid issues, even if it's only mild/borderline, you're supposed to be referred to a consultant obstetrician and endocrinologist as soon as you become pregnant!

nicky888 Tue 21-Mar-17 18:44:50

Please do not worry yoir levels are fine at the moment just stay on your current dose and ask to be seen by an endocrinologist during your pregnancy
It sounds to me that your gp lacks basic knowledge of thyroid function which is worrying!

Natalie2900 Thu 23-Mar-17 20:07:18

I have asked to speak to a specialist because I want somebody who knows what they are talking about. I feel so bad because my doctor is lovely and I don't want him to think I'm being disrespectful. All I care about is this baby being born! Xxx

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