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Mirena, PCOS and ectopic pregnancy

(3 Posts)
bethrm1721 Mon 09-Jan-17 00:45:37

Hello, sorry if there's already a thread about this that I've missed. I just needed to "talk" (write lol).

I'm currently in hospital after having surgery today to remove an ectopic pregnancy at 3-4 weeks, but I had a Mirena coil in and have PCOS. My last period was a week late then lighter than normal, but I'd done about half a dozen home tests and all were negative, so I didn't think much of it. Then on 29/12 I started getting really bad pain and bleeding, not like a normal period. I was at my mum's for Christmas and she called nhs direct who said to go to a&e, but I'd be seen quicker with an out of hours gp appointment at 3am (a&e and oohgp are the same place where my mum lives). The gp was very dismissive, didn't check for my coil,examine me or take bloods but did do a urine pg that she said was negative and told me to go home and see my own GP because she was for acute problems only - I was struggling to stand with the pain that night! She gave me buscopan for the pain (i have IBS) and I went home. Over the next few days the pain and bleeding slowed down so I put it down to a random extra period, but i booked in with my gp to be safe. By my appointment on Thursday the pain was getting bad again, so she sent me for bloods and arranged for me to come back the next day.

My bloods showed pregnant. And then urine test was inconclusive. I was floored. I had a coil and PCOS, how could I be pregnant??? My gp sent me to the early pregnancy assessment unit there and then and they confirmed the pregnancy, couldn't find my coil in the examination and said there was a chance it was ectopic or I was having a miscarriage, but it could also have been fine and growing normally. I was supposed to go back tomorrow for a scan to look if it was ectopic but over Saturday my pain and symptoms got much worse, very quickly, so I went back to the hosp and they admitted me, suspecting ectopic. The scan today confirmed it and my coil was still in! they operated today to remove the pregnancy, coil and my right Fallopian tube, leaving me with my left, but the left ovary is the one with bad pcos symptoms.

I'm trying to process how I've found out I was pregnant and had surgery to remove it in the space of 48 hours. And I'm scared about future fertility. The nurse and a dr who's looking after said they were stunned that i was pregnant with pcos and the coil at the same time. I think I'm struggling to get my head around it all. I didn't know what to think when I found out I was pregnant on Friday night, or if I would continue the pregnancy, but now the ectopic thing has happened and I didn't get a choice I'm wondering if maybe a part of me had wanted to. Has anybody else felt like this? It almost feels like I shouldn't be sad about losing the pregnancy if I wasn't sure I wanted it, but then a part of me is sad about everything that's happened. And I feel really let down by the coil and the first gp I saw. I know if it was ectopic it wasn't viable, but what if I hadn't had to have the surgery if they'd caught it earlier? Has anyone else been in that situation? Xxx

puckingfixies Mon 09-Jan-17 01:12:38

flowers I had an ectopic pregnancy with a coil fitted (not mirena) and known fertility issues. An incompetent consultant implied that the pregnancy might be viable, 48 hours later his colleague announced to a group of medical students around my hospital bed that my pregnancy was a self-resolving ectopic. Turned out he was right.

Obviously, we weren't trying to conceive, but I was devastated at the loss and confused and guilty, it's hard to explain but I felt I had no right to be upset because of the coil.

Fourteen months later I had a second ectopic. I was monitored from the day I had a positive test. Scans and bloods every 48 hours. It took 10 days to ascertain that it was definitely ectopic and I had surgery to remove the pregnancy the next day. They weren't prepared to take the risk of it rupturing. I was not offered a non surgical treatment.

The treating consultant told me I was unlikely to conceive without IVF and that I was at high risk of another ectopic. The following year, with one ovary (left side) and one fallopian tube (right side), I conceived with no medical intervention and now have a daughter.

Best wishes op, and take care.

bethrm1721 Mon 09-Jan-17 08:18:01

Hi puckingfixies (love that username!). Thanks so much for replying. I'm so sorry you had such a tough time but thank you for replying. That makes me feel so much better that you were able to conceive afterwards. My OH and I had wanted to start trying next year so it gives me hope that it's still possible. So happy that you've got your daughter now. Thank you xx

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