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Pre-Eclampsia - your experiences?

(29 Posts)
NovemberInDailyFailLand Sat 02-Jul-16 19:29:59

I'm 25 weeks, measuring large and have been told my blood pressure has gone up. Also had some blurry vision, but this comes and goes. I've been quite stressed these past two weeks, but trying to rest, though it's hard.

Can anyone tell me if they have had pre-eclampsia? What should I watch for? Do relaxation techniques help at all? I've read articles but would like to hear actual experiences.

Mishaps Sat 02-Jul-16 19:37:43

My DD had this and it was poorly treated TBH. On one occasion the midwife came round to her home, took her blood pressure and it was so high that the midwife said the machine must be wrong and dismissed it! Hmm.

She lived a distance from me and when I arrived when she was in labour I was shocked at her appearance - her arms and legs were swollen up like sausages and she also coincidentally had a severe rash, associated with her liver and the pregnancy. (but nothing to do with pre-eclampsia).

What you need to look out for is puffiness or swelling of your ankles - but it does sound as though you are getting good care and your BP is being monitored. I hope you have mentioned the blurry vision to them - they need to be monitoring this.

My DD was just unlucky in the care she received; but the good news is that she had no sign of pre-eclampsia in her following two pregnancies.

DameDiazepamTheDramaQueen Sat 02-Jul-16 19:38:11

I had it at 26 weeks,bp shot up and pretty much ended up in hospital until ds was delivered by c section at 32 weeks.

Monitor yourself very closely as PE is easily missed as you can put it down to feeling crap due to pregnancy,it can sneak up slowly.

As far as I remember the high BP was due to the PE and not due to needing to relax, although that helps.

Check in with your midwife and exactly what they tell you.

Ds is a strapping 6ft 15 year old now!

DameDiazepamTheDramaQueen Sat 02-Jul-16 19:39:03

Oh yes, the swelling was dreadful.

NovemberInDailyFailLand Sat 02-Jul-16 19:44:04

Message withdrawn at poster's request.

LittleElephant123 Sat 02-Jul-16 19:48:31

I found out I had it on my due date.

Had mentioned having sore heads to midwife 2 weeks previously but she never thought anything of it because there was no other symptoms.

Went for 40 week check on my due date expecting to get a sweep - my hands had swollen slightly but didn't think much of it no other swelling. Turns out blood pressure was sky high and had very high levels of protein in urine.

Got sent straight to hospital this was at 10am and my induction was started at 6pm that night.

I felt totally fine and completely unaware I had it

exLtEveDallas Sat 02-Jul-16 19:49:07

I was in hosp at 20 weeks and ended up induced just under 6 weeks early.

I had: weird heart 'fluttering' like an extra beat, swelling all over, especially my feet, blurred vision, 'sparkles' in my vision, chronic heartburn, headaches and a general tired and bleaugh feeling.

It took about 4 weeks of monitoring and trips to the hosp for them to formally diagnose me and take me in. In the end it was a long weekend of blood tests (one morning, one evening) and a 24 hour urine collection that made them certain.

I was admitted and put on a potassium drip. My BP still rose steadily (had to have Doppler type scans 3 times a day as well) until they couldn't hold on any more.

My treatment was ace, but I was in Germany, not NHS

NovemberInDailyFailLand Sat 02-Jul-16 19:52:25

Was there anything unusual about your pregnancy, for those who've had it?

I'm over 35 and started out slightly overweight (BMI 27), gained a lot of weight in this pregnancy, but never suffered with my first two.

Euripidesralph Sat 02-Jul-16 19:53:12

I had it , well hellp syndrome which is a former of pre eclampsia.... do not hesitate to chase second opinions if you think community midwives are not taking it seriously ....I didn't and it was not great (but ds2 and I are fine now so I don't scare you) .....keep an eye on the eyes (sorry really no pun there) ....what I will say is don't hesitate with headaches but a pre eclampsia headache is bloody awful you will absolutely know there is something wrong...do not hesitate do not second guess even if you go in twice a day go and get checked because it can move extremely fast

But a bit of reassurance I had dramatic and nasty ore eclampsia and we really are fine now and ds2 is a happy healthy 7 month old however my community midwives missed the warning signs and dismissed others .... don't rely on them xx

DameDiazepamTheDramaQueen Sat 02-Jul-16 19:54:08

If you haven't mentioned blurry vision to your midwife you should do so first thing Monday unless it gets worse over the weekend.

FaFoutis Sat 02-Jul-16 19:55:05

When I had PE I felt very distant and that was probably my main symptom. I had slowly swollen up like a balloon but assumed that was just pregnancy. Thankfully there was one good MW (out of many) who spotted it. Don't trust the MWs to spot it and act, you need to be vigilant yourself.
Visual problems are the first thing they look for so get yourself checked as soon as possible.

AliceInHinterland Sat 02-Jul-16 19:56:27

Better to be safe than sorry, trust your instincts if you don't feel right. Call the midwife team now and don't get fobbed off. I was told all of my symptoms (swelling, pain, dizziness, visual disturbance, nausea but no high blood pressure) were normal - they were not. You and your baby will be fine but you need to get checked out, pre-E can change quickly.

MadameJosephine Sat 02-Jul-16 19:58:40

Is the blurry vision a new symptom? Any spots before your eyes or flashing lights? Do you have a headache? Swelling? or any pain up near your ribs? Are you happy with baby's movements?
If you are already being monitored for high BP and you develop any of these symptoms I would call the hospital for advice

exLtEveDallas Sat 02-Jul-16 20:00:12

I was 33, a heavy smoker, in a very stressful job and slightly overweight (size 14) when I got pg. I gave up the fags but the stress increased. I didn't put a lot of pg weight on (except for the water retention), in fact I was slightly slimmer after I had her. I know I'm probably wrong, but in my heart I think it was the stress for me (that wasn't helped by nicotine withdrawal TBH)

NovemberInDailyFailLand Sat 02-Jul-16 20:02:45

Nothing really obvious at the moment, just really, really tired. Like stay in bed all day tired sad

jessplussomeonenew Sat 02-Jul-16 20:16:46

OP, I'd definitely give the midwifes a call (you should have a post 20 week out of hours contact on your notes) and mention the pain and the funny vision. It's probably absolutely fine, and it's easy to symptom spot when you're worried, but PE can come up out of nowhere and it's best to be on the safe side. Buying or borrowing a blood pressure monitor might help you to keep tabs on how you're doing. I was absolutely fine to 38 weeks and then got HELLP, but unlike Euripides I had no tangible symptoms - bar a very mild headache on the day my BP shot up to 190/130 - so it's not always obvious.

I have a happy healthy near 2 year old so all turned out well in the end!

Igottastartthinkingbee Sat 02-Jul-16 20:30:40

Hi, I had it with my first child. I had a few episodes of heart palpitations at 25 weeks which was checked out thoroughly over a couple of days with ECG/heart scan, all fine. Then I had a couple of weeks of just feeling generally run down, dizzy at around 28 weeks. I kept going to the midwife and doctor thinking I had low iron but my bp/bloods/urine were fine at this point. So I was told that I was fine just pregnant! I've since been told by the consultant that these symptoms were most likely the start of pre eclampsia even though I wasn't showing any classic measurable symptoms at that time.

Felt OK again for a few days (went back to work) but again felt rough, weak a day or two later. Sat at my desk and had a very strange sensation all over my body, thought my blood sugar must be low. But I didn't feel any better for eating and decided to go home. Popped in at the gp on the way (mother to be survival instinct?) to get my bp checked as I assumed it would be very low. I was seen immediately and my bp was 170/100!! I was 31+1. Straight to labour ward, pre eclampsia and HELLP syndrome developed very quickly over the next few days, transferred to a larger hospital 2 hours from home, DS delivered by c-section at 31+6.

When I initially went into hospital I had no idea how serious my situation was - I thought they'd send me home again!! Only when they had me transferred by blue lights ambulance did I realise I'd have a prem baby very soon. I had some slight swelling, 'sparkles' in my vision sporadically and headaches but some symptoms were very odd. Tingling sensation across my scalp, pain across my jawline and neck, reflexes were very sharp (Drs check relfexes a lot with PE). Weird things happen when your bp goes sky high!

I was very poorly afterwards (bp topped out at 210/110 shock), my condition got much worse before it got better but me and DS 4 years on are fine! There's a DD now too so it didn't put me off, although I needed a lot of reassurance from my consultant before trying for another baby.

So I've no idea if my story helps you but if you are worried at all keep going back to your gp or midwife. If I had driven home to go for a sleep, which I very nearly did, instead of going to the gp that day my story could've been very different. I hope all goes well for you, good luck flowers

Igottastartthinkingbee Sat 02-Jul-16 20:34:24

OP just seen that you are extremely tired. I was like this too, couldn't get off the sofa sometimes. Please call your labour ward, they will deal with anyone 25 weeks or more into their pregnancy as baby is now viable. Give them a call now.

Tanfastic Sat 02-Jul-16 20:34:28

Th worrying thing is that the symptoms of PE can be similar to the normal pregnancy symptoms we get in late pregnancy.

My PE started I think around about my due date but undiagnosed. My feet and ankles swelled from my normal size 5 to a size 8, they were huge and my ankles were shiny and massive. Was told normal in late pregnancy. I also had fluctuating high blood pressure. Again they took my blood pressure several times in a row and recorded the lowest result on my records. I was in and out of hospital being monitored like this until I was ten days overdue. The problem I understand was that because there was no protein in my urine at that point that I "didn't have pre eclampsia". On my last day of being monitored in hospital before I went into labour they did a trace on my baby and although it wasn't "text book" a consultant decided to send me home.

The next morning I woke in labour and in horrendous pain (not at all what I imagined labour to be like). I decided to go to hospital (even though they told me to take a paracetamol and stay at home as long as possible). Luckily I didn't take that advice because by the time I got to the maternity ward I am told I was on the verge of fitting and my organs had started failing. I honestly felt pretty ok though apart from the horrendous contractions!

I was rushed straight into theatre and had my son under a GA emergency CS. He was in Scbu for about a week with suspected brain damage due to hypoxia and I was in intensive care. Was terrible.

Mine was severe onset PE I'm told which is rare, but I can't get it out of my head that I had the classic symptoms days before the horror above. I do feel slightly aggrieved that they let me go on and on over my due date because they "wanted to let nature take its course" rather than induce me.

However all is now well, he is now 8 and although he has learning difficulties he is a lovely healthy little boy...and I'm fine luckily. Never went on to have another though, scared the shit out of me confused.

Tanfastic Sat 02-Jul-16 20:39:20

Severe rapid onset pre eclampsia I mean.

seven201 Sat 02-Jul-16 21:12:43

I had mild pre-eclampsia but had existing high blood pressure before pregnancy. Only symptoms I had were general feeling crap (I had other things eg gestational diabetes too so that could have caused it), high bp, protein in wee and blood and slight swelling in places. They upped my bp meds and I had to go to hospital twice a week for monitoring of my bp and of the baby. They were always very clear that if anything changed eg if I got new symptoms I should call them straight away. I bought myself a bp machine for £20 from boots - really worth it! NHS website lists the symptoms to watch out for.

Considerphebas Sun 03-Jul-16 08:40:50

I had pre-eclampsia in my previous pregnancy and currently in hospital at 33 weeks with it again! First time my bp started to rise around 20weeks, it was relatively well controlled until around 30 weeks where it started to rise again, they added in various drugs and monitored me weekly, at 36 weeks I was a huge balloon and they found protein so bought me in for induction- all went well and Ds is a strapping 4 year old! Bp went down quickly after that pregnancy.
This time was similar - but I've been seen by cardiologist and obstetricians more often. At 30 weeks it started to go up despite labetalol so they added more in, it stabilises for a few days then starts creeping up until the admitted me Tuesday to try and get it under control. Now on 4*200mg labetalol and trying nifedipine. Being in hospital is incredibly dull but but daily checks on baby, bp monitoring, growth scans and daily bloods are keeping me well! My face and ankles are swollen and I have a headache but no protein yet- for me this seems to come right at the end!

relaxation is always good- I did some hypnosis birthing and felt it really helped manage the anxiety around the birth and feeling out of control. I would also day- monitor bp at home and record, ask when you should come in, prepare a hospital stay bag or at least show partner where things are in case you need to stay in and don't let anyone fob you off if you feel under the weather. Also be prepared that the first few days on a new bp medication can make you feel very odd! Try to stick to certain times and I always take mine with food as that seems to help.

Igottastartthinkingbee Sun 03-Jul-16 20:37:56

How have you been today november?

CarrieLouise25 Sun 03-Jul-16 20:59:13

I had a warning sign before I went into labour, but a student midwife took my BP and it read 100/60. It definitely was not that! I should have pushed for a second opinion, but I didn't.

I ended up going into labour a week early, but then afterwards I ballooned. Legs and feet very very swollen. Vision bad (floaty bits), bad headache, BP was 160/110 and climbing.

Not detected in wee, and BP test wasn't taken correctly. If in doubt, please see midwife.

I was very very stressed at the time, so not sure if this was to blame or not. Beta blockers eventually sorted it out, but I'm still on the higher side of BP than before pregnancy.

Hope everything is ok x

Sirona Sun 03-Jul-16 21:09:11

My face went swollen and I had headaches I put down to sinus headaches along with the high bp. Mine was managed very well and I spent the last month in hospital as baby had IUGR because of it. Lots of drugs, growth and Doppler scans and steroid injections to help his lungs develop. He came early by cs as he'd stopped growing was tiddly at 2lb odd but now a strapping tall 9 year old. My bp shot up scarily after having him and I had to have a nurse sitting with me and monitoring me constantly.

Good luck and I hope it goes well for you.

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