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Pregnancy

Coming off citalopram

25 replies

jroly81 · 08/08/2015 15:13

Hi, I'm 6 weeks pregnant with my 3rd child. I had been on 20mg citalopram for just over 12 months. I decided to come off it as was advised it was bad for baby. I went down to 10mg for 5 days and felt awful. I am moody, feel sick (mixture of morning sickness too) feel increasingly dizzy everyday. I just want to sleep all the time or just stay in the house. I've asked my boyfriend to move out because I just can't stand him being here. I just feel crap!! I went back to the doc and he advised to come of it completely with a view to start on fluoxetine in 5 days.
Will I feel better again, I felt like this before I started on the citalopram and worse when I started it. But felt fantastic once it had settled down. I'm scared I'm gonna feel like this for ages and its ruining my happiness at being pregnant. I'm just so sad ?
Any advice and reassurance welcome
Thanks

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warriorbot · 08/08/2015 15:54

Oh, OP - I came off sertraline just over a year ago and withdawl was a bastard. It really did get better eventually but my taper was very, very gradual. I found the fatigue particularly awful.

Add to that your pregnancy fatgue and it's no wonder you feel terrible. Couple of things:

The withdrawal will get better but don't be a hero in the meantime. Get signed off if you can and take gentle exercise (yeah, I know that sucks, but it does help.)

I don't know what the situation is with your boyfriend but if he's any good at all, tell him what you're going through and give him the chance to support you and the baby. Just cooking you something you fancy, making sure you cleaned your teeth, that sort of thing. You need (and deserve) help. You're doing two tough things at once.

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jroly81 · 08/08/2015 16:07

Thanks, he is being helpful but its just kinda annoying me ha ha, to be fair it was his decision to move out. I've not been with him for long so I suppose I'm still getting to know him too. I was with my ex husband for 16 years and separated last year, hence the depression. I'm not used to people looking after me, I kinda get offended by it, sounds daft but its the way I feel. I suppose the withdrawal is magnifying my negative feelings. Its just horrible we have to go through to get better.

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coveredinsnot · 08/08/2015 20:17

Please read this - it's a post on another forum but it is so so relevant to your difficulties. The whole forum itself is AMAZING and you will find loads of help and advice there. I won't say any more as literally everything you need to know is over there. Start with this thread and take.it from there
Food luck!

survivingantidepressants.org/index.php?/topic/7800-pregnog-stopping-escitalopram-in-early-pregnancy-help/

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coveredinsnot · 08/08/2015 20:18

Good luck haha, not food luck!

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jroly81 · 08/08/2015 21:27

Ha ha, I've just had a good read. Thank you so much. It's so much better to know there are people who are going through the same thing (not that I would wish this feeling on anyone).
It's making me think maybe I should try cone off anti depressants altogether and not start the fluoxetine. I'd hate to harm my baby but also want to enjoy the pregnancy x

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Cazzybaby · 08/08/2015 22:24

It will get easier, I'm 7 days fully off at 20 weeks pregnant. It has been a long hard slog but I promise it gets easier!! Xxx

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jroly81 · 08/08/2015 23:07

Thank you, I feel slightly better already x x x x

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coveredinsnot · 09/08/2015 05:33

If I were jn your shoes I would attempt to not take any medication during pregnancy if you can
What you're experiencing now is just your body and brain readjusting to being without the meds
It most definitely will and does settle down! Doctors will be anxious about you, however, and will likely tell you to take fluoextine. Fluoextine can make pepper quote agitated and anxious for a little while before it starts working so you need to consider this too. And also consider that your gp is definitely not an expert. Perhaps get in touch with the doctor mentioned on the thread I linked to? This is a significant decision to make ad being in SSRI meds will have am effect on your baby.

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coveredinsnot · 09/08/2015 05:34

Pepper quote = people quite
Bloody autocorrect combined with my fat fingers! Gah!

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jroly81 · 09/08/2015 06:06

Thanks, after reading the thread I am seriously considering coming off all together. I think I was a bit hasty running back to the doc when I felt bad. I am just gonna give it another week and see how I go. The "zaps" are worsening by the day, but although uncomfortable, they are the easiest thing to cope with.
It's just literally heart breaking going from being so happy to thinking I've buggered my life right up and everything I do is just a massive mistake. Yet deep down I know its not. Arrggh, bloody life hey !!! Just take one day at a time x x x

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Cazzybaby · 09/08/2015 11:34

Don't forget you've got pregnancy hormones thrown into the mix too! I found that things settled a lot more around 12 weeks. Be kind to yourself your going through a lot xxx

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jroly81 · 09/08/2015 11:56

Yeah true, it was 10 years ago when I had my first baby, I suppose I've forgotten how much change your body goes through.
Thanks everyone, its so nice to get feedback from people who know what I'm going on about. ????

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Sophia1984 · 09/08/2015 12:48

Hi, I'm on 20mg of citalopram too. There are conflicting reports, but a lot of them say (depending on your reasons for being on it) it may actually be better to stay on it, (or at least taper very, very slowly) as it is far worse for the baby for its mother to be stressed out. I've heard of some doctors telling people to come off it, only for the midwife to say that that was bad advice! I am going to possibly try and cut down to 10mg, but I am worried that cutting it out completely could lead to me having PND. I've got first doc's appointment tomorrow so will see what they say. The head zaps are horrible aren't they?

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Sophia1984 · 09/08/2015 12:52

Also, I would take that thread with a massive pinch of salt. That is just one doctor, and there are many, many doctors who do not think citalopram causes any harm at all. In this thread, lots of people say their GP was happy for them to stay on it: www.mumsnet.com/Talk/pregnancy/a458711-citalopram-and-early-pregnancy

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Flambola · 09/08/2015 13:17

I'm consultant led and he is happy for me to continue on 40mg Citalopram.

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jroly81 · 09/08/2015 13:38

Wow, I did go to see the midwife and she did say that It's up to me. I'm worried about going back on it now though because I dont want these feelings lasting longer Tha needed. The head zaps are getting worse, I'm lying still on the couch and I'm getting them ? its driving me mad because its the kids hols and they want me to go running round the park etc ????

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Lemmyness · 09/08/2015 18:38

I was put on citalopram 20mg when I decided to start trying for a baby as it is less risky than other antidepressants (previously on fluoxetine) I found out I was pregnant and my GP advised me to cut the dose in half (abruptly) with a view to stopping it.
In brief I ended up having so many problems controlling my mood that I got into trouble at work, my head just wasn't in it. I couldn't concentrate, I made minor mistakes and had a bad attitude. At home I was depressed and getting towards suicidal. I genuinely didn't know if I wanted my baby considering how it was affecting me.
I went back to the GP who was sympathetic but resistant to my wanting to increase my medication.
I'm a pharmacist so I did my own research; the main risk they are worried about is something called pulmonary hypertension. It affects just 2 in 1000 babies born (normally) this risk triples for those of us on SSRIs which sounds scary but is still only 6 in 1000.
I decided the risk was worth taking - I didn't want my baby to be the "cause" of my life/career going down the tubes.
It took me to persuade the GP that taking 20mg was worth the risk, he was of the opinion that the lowest risk from drugs must be the best. I went from a (clinically diagnosed) severe depressive relapse to my normal self over 4 weeks and I've never regretted my decision. Baby's heart and pulmonary function are fine on all the scans. I'm due in September so I can't be sure there have been no side effects, but at least I'm in a mental state where I can cope with what life throws at me.
I wouldn't try to persuade you to take the same risks as me, but at least get the facts you needs to make a decision.

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Lemmyness · 09/08/2015 18:49
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rugbychick · 09/08/2015 19:29

I was on citalpram when I was pregnant with dd. I was advised by both my lovely, sensible midwife, and the consultant I saw (I had consultant led care for a number of reasons, one being my age-39) not to stop taking it as the risk to my mental health was far greater coming off it, than the tiny risk of a problem to dd by continuing with it. I chose my consultant (I'm a health care practitioner), as someone I'd worked with previously, and recommended by another consultant. I trusted and respected her judgement. So kept taking it.

There's no problem at all with my dd. functioning normally, intelligent, hitting all targets and some, funny, articulate and very, very, very active! Climbing, running, jumping etc

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Sophia1984 · 10/08/2015 16:11

Just had my first doctor's appointment with a lovely, lovely GP who is very happy for me to stay on citalopram if I think that is what is best for my health, as stress would be bad for the baby.

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jroly81 · 10/08/2015 20:08

Thanks everyone for your much needed advice. I think that the gp I saw didn't really give me hard evidence that I could base my decision on. However on reading the info on here I have decided to go back on the citalopram starting with 10mg for a few days then back on to 20. After having just 10mg today the head zaps have sub sided and I do feel slightly better in my head. I've been to the park with the kids and to my friends rather than sat on the couch. Obviously tomorrow could be different but gonna take one day at a time. I just want to enjoy this pregnancy and not worry. Thanks again for all the advice its been a life saver x x x ?

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BluePeter · 10/08/2015 23:33

I saw my GP about this a couple of weeks ago and he said a research paper had just come out saying it was safe to stay on citalopram during pregnancy. He said that if I had gone to him the week before, he would have encouraged me to come off it.

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Hootytoot · 11/08/2015 10:17

This reply has been deleted

Message withdrawn at poster's request.

jroly81 · 11/08/2015 10:52

Thanks again guys, I think when I do decide to come off it, I'll definitely take it slower. The symptoms were literally unbearable! I need to be happy again and enjoy this exciting time. I'd be so worried about PND also. This way, hopefully, I can be normal again x x

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WorldofTofuness · 12/08/2015 15:26

Hi Jroly,

Long-time lurker here: been reading Mumsnet for a while, but joined so I could hopefully give you some of my experience (hope that doesn?t sound too arrogant). A kind of ?apology? in advance: I?m not too big on the huggy-supportive stuff rather than the technical, and my posts are likely to come across as a mix of Doc Martin and Sheldon Cooper?Wink

My history: went on to 20mg then 40mg citalopram for depression the other year (probably triggered by surgery, but other stuff going back years also contributed). After a few months, decided to taper off as far as poss: I was 40, had just had a MMC (not problem with embryo), the previous uterine surgery, and had read a few studies that suggested a dose-related link between SSRIs and MC (and then I also found I had immune/clotting problems). Given all this, the decision to reduce (from the max legal dose) was a general ?doing the best I can? rather than a particular urge from the experts (by coincidence I got called into my GP surgery to discuss my dose just after I had moreorless decided I would do this, but they seemed less aware than me of all the issues and didn?t try to lead me into anything).

Did most of my tapering pre-pregnancy, but I?m now on 10mg (and 26w with my 1st), and here?s a few things from my ?journey? that might be helpful:

  1. Beware that the ?You must come off medications during pregnancy!? is a general precautionary one, and doesn?t mean that the particular one you?re taking has been found to be dangerous. Not just an issue with SSRIs, but there is so much of this with everything, that the message as to what?s truly dangerous (eg thalidomide, warfarin) gets confused. (T?Internets are some of the worst culprits here too, with apparently pregnancy-focussed sites taking great delight in eg ?informing? pregnant women of the dangers of ginger and lifting anything over 9kg, grr Angry)


  1. Even medical professionals don?t always see things in the round, focussed as they are on their own area. Someone who tells the patient to come off a medicine due to ?risk? is comparing that patient with the hypothetical healthy patient who has no reason to be on that drug. But it?s a false comparison: the point of reference should be that patient untreated. Most health professionals do thankfully realise that the risks of the drug must be weighed against the risks of not treating the underlying condition properly?although there is a danger that this is registered less in mental, rather than physical, conditions.


  1. Many drugs can?t be safely withdrawn from quickly, let alone cold turkey (and recognising this a particular problem if you have someone unfamiliar with them telling you to come off). IME, this is an area that online patient experience can be useful as a guideline. Lots of people report that even the protocol they were given by their GP for SSRI withdrawal was too fast. The one I devised for myself was blocks of 10 days, alternating to start 40, 35, 40? then 35, 35, 35? then 35, 30, 35? GP didn?t argue when I proposed it. Understandable if you might find this a bit slow now you?re already pregnant, though.


  1. Don?t be too hung up on coming off the citalopram altogether. From the research I read, what risk may exist depends on dose (as well as type) of SRRI: just by cutting it you?re doing good work?and unlike (eg smoking), it?s possible to stabilise at low doses, it?s not like you will addictively need to climb up again.


  1. For myself, I?m a believer in EPA/DHA fatty acids: basically, research seems to show them as a useful adjunct to SSRIs for treating depression, ie patients report a greater effect from a given dose of SSRI. (The research I?ve read was only SSRIs, though, and only for depression.) I?ve been taking fish oil capsules/oily fish equivalent to about 150g fish daily for the past 15 months. There aren?t really any contra-indications, so I figured the worst it could do was nothing, and I do think it may have helped. Obviously I?m not telling* you to go and do the same, but may be worth reading the professional sources on (and talking to your psych professional, if you have one (I didn?t/don?t)).

*Things to beware of: a) ensure you get fish oil not fish liver oil (and make sure any med professionals you tell are clear)?latter can be too high in vitamin A. b) stick within guidelines for oily fish consumption, and look out for oils that have been filtered, to avoid excessive heavy metals etc. c) fish oils may be a blood thinner, obviously look at in context of your other medical history, although you would probably have to be eating equivalent of several hundred grams fish daily for this to be a problem.
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