I've made it to 36 weeks of healthy pregnancy only to find out yesterday at a routine growth scan that my beautiful baby has CDH.
Her diaphragm hasn't formed properly so organs that should be in the abdomen have floated away into the chest cavity meaning her lungs haven't had enough room to develop.
The survival rate is 50/50.
I'm devastated. I can't believe this is happening to her and to us, even if she survives this and the open surgery in her first few days of life to correct it she's going to have so many problems as a result of this.
I can't relate the baby kicking lumps out my insides to this poor wee soul on paper.
I won't get to see her or hold her before she's intubated and whisked off to NICU.
Can't believe it.
Please someone tell me there's hope.
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Pregnancy
So so scared. Congenital diaphragmatic hernia (CDH)
29 replies
Sn00p4d · 24/01/2015 14:12
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