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Oesophageal atresia,anyone experienced this in their pregnancy?

(4 Posts)
ispentitwithyou Wed 26-Nov-14 20:23:14

Hi, I am posting on behalf of my best friend,who's baby has been diagnosed with oesophageal atresia whilst in the womb at the 20 week scan.

She has some knowledge of this as her niece has this condition and her case is quite severe,however this wasn't realised until she was born so she can't draw from her sisters experience of it in pregnancy...

Basically I have trawled the archives here and can't find many posts about it at all....

I am after any experiences,information,opinions etc particularly of this condition in pregnancy...

One of the biggest concerns is that my friends amniotic fluid is increasing quite rapidly as a "side effect" of this condition,her current fluid level is 37 and should be 25. They wanted her to take some tablets to try and reduce the water but she is allergic to aspirin so they have said she will have to see her doctor to see if she is able to take it...I think ultimately that will be her decision though,not sure why exactly it is a bad idea to take those tablets if you are allergic though.

Also at what gestational would people say she is ok to be induced if necessary? She is currently 28 weeks.

Hoping someone may have some answers...

Thanks so much x

stareatthetvscreen Wed 26-Nov-14 20:27:40

no experience of that exact condition but something similar - have pmed you.

Wearegoingtobedlehem Wed 26-Nov-14 20:29:59

Google tof forum, it's for children born with a tof ( tracheal oesophageal fistula) or oa ( oesophageal atresia). You will find loads of support there!!! Wishing your friend all the best. I would have thought that in a sense it is a blessing to have the diagnosis in utero- although in another sense not sad. All the best xxx

ispentitwithyou Wed 26-Nov-14 21:09:55

Thanks so much,both of you

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