Hi all
I am feeling really fed up and can find no websites to talk to other PKU mums to be, so im going to rant here in the hopes of someone who might listen and hopefully talk me out of my bad mood.
I am 14 weeks pregnant and I have PKU, which for those of you who dont know, it means I have to be very careful what I eat, as my body cant process phenylalanine. If I eat it, it builds up to dangerously high levels in my blood and can damage the baby's brain, heart or can cause behavioural problems. I have to eat a limited amount of protein and do regular blood spot tests which are monitored by my dietician and my protein allowance is altered to either increase or decrease my protein levels.
I dont seem to be able to control my levels at all at the moment they are going up every test and I am eating less and less protein. I had a missed miscarriage earlier this year and the only syptom I had was that id lost it, was that my levels were going up constantly and I couldnt seem to bring them down, the same as now.
I am so fed up of worrying about eating all the time and dreading the phone ringing in case its my dietician to tell me theyve gone up again, like she just has. My doctors make picking up my prescription an ordeal and I have to make endless appoinments to adapt the presciption to suit what I need for my levels. Im exhausted and I find myself constantly praying that I'm not causing damage to my tiny baby and it doesnt help that my inlaws have told me I'm being selfish trying to have a baby because they are convinced I'm going to cause some problems, even though lots of people with PKU have perfectly healthy babies all the time.
Need to get my head sorted and stop crying, just all feelig too much. Sorry to go on. x
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Pregnancy and pku blues
4 replies
bambi07 · 27/08/2014 19:43
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