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Club foot showing on ultrasound - any experience?(33 Posts)
Hi, this is my second pregnancy and the ultrasound has shown that my little girl has a club foot - or talipes equinovarus.
Has anybody had any experience of this and what they can do after baby is born ? I've had a more detailed scan and they can't find any other anomalies so hopefully this is it - but googling is just causing me more issues
Thanks in advance
one of my dd's best friends was born with quite severe bi lateral talipes
and as you have been told above, the ponsetti treatment route is excellent and though severe our friend didn't have to have surgery.
the early full cast period is hard going but gro bag sleeping bags are a good option for a cover up or tops and fleece blankets. jersey dungarees with the inner leg poppers if you can find them were very good too I seem to remember
at 4 the boots at night period is over, and though our friend has hyper mobility as well so her joint strength isn't what it could be, her feet and ankles are great. she runs as fast as her sister and friends.
Thank you all- I was really starting to get worked up before I posted this thread.... My other little girl is blind in one eye and has a whole heap of other probs so I was feeling a bit "why me" but you've really helped I will probably pm after the birth and save the names of people clued up in the subject!! Thanks so much
Yes, we cut all the feet out of DD's sleepsuits. I fully intended to hem them, but never got round to it, because, you know, BABY and she looked very scruffy! I still have all the feet I cut off the suits in a little box with scan photos, don't know why though really, weird thing to be sentimental about.
Agree also re: the white leather boots you usually get given first, I could just not get on with them at all, DH had to deal with them. Eventually DD kept escaping from them and I had to insist (I'm sounding like a bolshy cah but am not really, honest) on getting the nice suede one which were amazing, so much easier. SO MUCH easier.
I think they might be the ones that Ponseti designed and we were told that they were really expensive hence the NHS prefer to use the white leather ones which are just as good. But they aren't as good if parents can't use them and make the whole thing seem really daunting iyswim - as soon as DD got the suede ones, with 3 buckles, it was a piece of cake comparatively. The main problem as previous poster has said is parents not sticking to the treatment, so anything that makes it easier is good!
And yes to the bar making nappy changes easier! Plaster cast stage though, those dudes get dirty! Bright orange baby poo stains, boak. They are also heavy, on a small baby! DD was 2 weeks and they weighed as much as she did, and she was uncomfortable, and didn't sleep well at first etc. Not trying to scare you, just prepare you...
Also, be prepared that if your small baby has plaster casts on, people will give you the side-eye and assume that you have dropped it. I did not like this.
And also, it might be worth considering referring yourself for counselling, not because it's a terrible thing or anything, just to maybe process your feelings about it, esp because as you say, your DD1 also has health problems and it might just help you to have a private space to be allowed to feel dbfsjkdfkjskjf in, in order to come home and be superhero mum again? You will be fine, but be sure to look after yourself too!
Sorry for rambling....<goes to find random strangers to pester in the street>
I told a 'well meaning' older lady that DS (then aged 4 weeks) had fallen off his bicycle.
The joy I felt in doing that kept me going for ages!
Lamandler That is pure evil genius, wish I'd thought of that.
I didn't mind people asking me about it straight, I'm more than happy as you can probably tell to spread the gospel of Ponseti far and wide, but I didn't love people staring openly but not asking, or asking rude questions, but I guess it's about them and not you, and you stop caring pretty quickly.
OP when are you due btw? Also, sorry, I thought of another thing, you can get a bit of pipe lagging and cut to size like 15cm or whatever and tape it over the bar. So they don't hurt themselves or you with it. Bridge of nose.....ouchy.
Hmm I'll probably get stuck with the leather ones at first but I'll be vocal about changing them if needs be! Well dd was bright red for about the first 3 months and covered in blisters that looked like is thrown a cup of coffee over her so am used to " well meaning strangers" grr...
I did think about counselling but luckily I have a very supportive dp who talks through all my thoughts with me! I'm due early May so probably late April!
Btw I love the thought of telling people she fell off her bike
Something else I forgot to mention...the babies born with fixed talipes in our area (north notts) are given a hip ultrasound as well, as the talipes can be associated with hip dysplasia. Although our consultant said he's not come across any of his patients that have had both conditions! My DSs hips were fine
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