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Hyperemesis Support

(976 Posts)
LucindaE Fri 21-Jun-13 17:52:14

We need a new thread.

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH and Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.

LucindaE Fri 21-Jun-13 18:00:22

OK, I've got a pile of cyber cushions here for everybody to collapse on.

wavesandsmiles Fri 21-Jun-13 18:39:04

Collapsing on a cyber cushion after a long day! Positive news is I had my growth scan and the little one has grown. He is still little but growing and that's all I wanted to know.

Hoping for a less pukey weekend! I have a repeat prescription for ondansetron and fortisip which might see me right up to the arrival. 5.5 weeks til the due date so not so long in the grand scheme of things.

Thanks for the new thread lucinda

RNJ3007 Fri 21-Jun-13 18:42:36

* collapses in a heap *

2.5 hours in hospital this afternoon, what fun! Being referred up to OH and physio, as I now can barely walk. Lost another 1.3kg though.

On a positive, my liver and kidney function are just within normal limits. Phew! Managed to get down to 2 ketones! Bub kicked the Doppler repeatedly, so consultant is happy that he's active etc. Scans booked for 32, 34 & 36w as I'm measuring 4w behind.

Thinking of all you lovely ladies and hope you get some relief soon.

LucindaE Fri 21-Jun-13 19:41:14

You poor things, let me add some more cyber cushions. Good news about tests, anyway, and reduced ketones.

Sally8655 Fri 21-Jun-13 19:54:05

I think it may be some good news for me too. I've taken the first ondansetron and think it may have taken the edge off the sickness. My GP only have me 6 x 4 mg tablets for the weekend, however I think if I had 8mg it would have made a huge difference. I can't double them up as I only have 5 left till Monday but its a start :-) I know ill be able to get some more from the hospital next week. Yay!!

wavesandsmiles Fri 21-Jun-13 20:52:22

Great news sally smile I am on oral ondansetron, and have 3 * 4mg a day. I also have ranitidine to help with the acid caused by vomiting, and ordered some glycerin suppositories off Amazon to help with the ondansetron-related blockages blush

I'm off to bed soon, much as the cyber cushions are comfy, I think I'll sleep better in bed

RNJ3007 Fri 21-Jun-13 21:25:15

Great news indeed sally.

I feel your...pain, waves. Ondansetron plus iron has been a, erm, experience?!?! Glycerol supps, Boots do big boxes. I used my boots card points, haha!

I too have a lovely repeat 'scrip - I get boxes of 60x4mg every 2.5 weeks. Fortisip and I do not get on it seems. 5.5 weeks to go eh? Good luck. 10 weeks til EDD, but today was about 50% effaced and 1-2cm dilated, showing that the niggly cramps feeling may be more serious. Think I've finally absorbed that news. Hoping to make it til at least the due month though. Fingers crossed eh?

wavesandsmiles Sat 22-Jun-13 08:33:24

Fingers crossed RNJ that you hold on til your due month. Apparently it can be many weeks before active labour that the cervix effaces to that extent, with the accompanying dilation so hope that's the case for you.

I was speaking about fortisip to my consultant yesterday and the general yuckiness of it, and explained how I have been making it into icecubes, icelollies and jelly, and said maybe I should write a fortisip recipe book. Maybe I will put down a list of ideas and how much to dilute it, in case it helps other people?

I have to try to get protein in me for the last few weeks apparently. I don't eat white or red meat (a little fish but the smell is awful so haven't been on that during this pregnancy), so am not sure what is best. (whether I tolerate it is another matter but I'll try!)

RNJ3007 Sat 22-Jun-13 08:41:04

After my run of contractions at 27w, I was checked and my cervix was long and firm and less than 1cm dilated, so it's a change, which isn't great. Trying to take it easy!

You really should write that book, I'd certainly be interested!

Protein is hard. Quinoa, beans? If you find something that works, please share, I too am struggling with protein.

Sally8655 Sat 22-Jun-13 10:44:35

Hi everybody, what a strange night I had. Tossing and turning all night, trying to sleep, but felt so restless. Then after finally getting to sleep at about 3 woke this morning with a right sweat on!
My ondansetron seems to still be taking the edge off the sickness still though. Was able to have some strawberries and a cereal bar for breakfast which I've so far kept down, although the thought still makes me slightly nauseas.
Can anybody tell me though if they suffered from dizziness and complete exhaustion. It could be that it is my ME/CFS as I also suffer from this, however I don't think so as its just been the past month.
If it is pregnancy related, will this improve or do you normally suffer the whole duration. It's nice that the nausea is improving with the new drugs and I'm able to eat a little but unfortunately still stuck in bed for now.
Hope you all feel a little better this morning xx

wavesandsmiles Sat 22-Jun-13 10:54:20

Make the most of the opportunity to rest in bed sally. I learned the hard way that overdoing it has bad consequences.

I've had dizziness and exhaustion which was worse in first and second trimesters. I have low blood pressure naturally which has gone lower during the pregnancy which has caused blackouts as well. If concerned, speak to your gp though. So glad the medication is helping you

feekerry Sat 22-Jun-13 11:51:22

Oh god oh god. I think its happening again....
I had hg with dd1 and am now 6weeks with dc2 and felt fine up until couple of days ago but now sat here in tears as i feel it starting all over again. Don't think i can do this again....sad

Sally8655 Sat 22-Jun-13 12:13:52

I completely sympathise feekerry, this is my first pregnancy. Was diagnosed with HG early, as I started being severely sick from 4 weeks. (Didn't even know it started that early) it was like one day I was tired the next 24/7 sickness.
Did you have anything that helped the first time round? I heard if you start medication as soon as it starts it is more effective.
I waited to see if i could cope before giving into medication and only just found something that helps a bit after a month of hell. I hope it's not as bad for you this time and it passes soon xx

feekerry Sat 22-Jun-13 12:22:17

Well i ended up hospitalized twice last time at 6 &8 weeks and finally got it under control with both ondansatron and cyclzine but had to take up to and including in labour. I had 12 weeks of work too.
So i do know what will work this time but i just don't know if i can cope with and poor dd.
Felt fine till the other day so thought this time it would be different sad

Sally8655 Sat 22-Jun-13 13:31:07

So did you take ondansetron and cyclizine at the same time? Was it more effective this way and can you remember the dosage you used. I spoke with thd hospital today and they advised they won't prescribe me anymore ondansetron as I'm supposed to use it to only stop the immediate sickness and then switch back to cyclizine as its cheaper. She also told me its unlikely that my GP will prescribe me anymore due to the cost too. I think it's unlikely too as he's a complete jerk. Don't know what I'm going to do now as the cyclizine didn't work by itself and I was sure id get ondansetron from the hospital. Fed up completely! Shouldn't have this worry of not being able to get a drug when i finaly found one that helps. Not been sick once Since taking it yesterday.

LucindaE Sat 22-Jun-13 14:13:21

Feekerry Hello, I remember you well, so sorry it's started up again, poor you, I think everyone who goes for it a second time and gets those first twinges panics, yet often it isn't as bad as they dread if they get prompt meds, partly because they have a little more idea how to handle it. Some evne find it isn't quite as bad as they dreaded, like Nannyl this time round (I suppose she must have delivered now). Is there any chance of am emergency prescription out of hours?
Sally I believe the cocktail of Ondansetron and Cyclazine is one of the most effective, and I'm indignant as you have been admitted, and early, that they aren't prepared to prescribe. As you say, its expense that is the real issue - there's any amount of stuff on MOH's wonderful website about meds (link above on my introductory blurb, sorry, forgotten it offhand) and on how though Ondansetron isn't officially passed like Cyclazine it's been used by thousands of sufferers safely, and is routinely used in the US.
RNJ I'll cross my fingers too you get to that month - I had no idea about the information about effacement - it must be nerve wracking. Bad enough to suffer Hyperemesis without being anxious too. So you used your Boots points to 'treat yourself' grin?
Waves Lol about cushions, Great idea about a book! You are innovative even in the middle of suffering this, that is impressive.
I hope Loub MrsMG and everyone is coping today.
Apologies to anyone ignored.

feekerry Sat 22-Jun-13 15:30:20

sally yes i took both together. 8mg of ondansatron 3 times a day and cyclzine 3 times a day. And alternated them. Neither alone worked. I was prescribed cyclzine first but was back in hospital within a week. I never really had an issue with getting either prescribed. But my doctors are very good. Ondansatron was first prescribed by hospital and docs were happy to continue.
I tried every week to reduce dosage of both and by 30 ish weeks i was down to 1 tablet of each a day and coped with that but as soon as i got to 36ish weeks had to increase again.
lucinda hello! Glad to see you are about but under these circumstances is crap. I think you are right tho as i haven't been that sick yet and think the fear is massive. Not sure what to do as so far it is def not hg as can keep basic food and water down but i am being sick couple times a day now and feel sick constantly but i can function iyswim. Unlike last time
I am off work all week next week so will see how it goes tonight/tomorrow and i can get an urgent appt if need be. Thing is im not sure whether i genuinely need the drugs or not.....
I am tempted just to get them.anyway....

Sally8655 Sat 22-Jun-13 15:56:36

Thanks for the info ladies, I'm wondering if I should try taking one of my cyclizine tablets with the ondansetron to see if it gives me a better effect that just the 4mg alone taking the edge off. So just to clarify its safe to take a cyclizine tablet now although I just took an ondansetron about 30 min ago?

feekerry Sat 22-Jun-13 16:06:20

Yep i did and dd is now a v lively 15m old! They do different things and work in different ways. So different types of drugs. It was actually my doctor who suggested taking both together. I uses to take one tablet 2hrs then 2hrs later ondansatron etc etc.
Not sure on the what's and why's but its the only thing that worked for me and it pretty much worked within a few hours.

Sally8655 Sat 22-Jun-13 16:19:10

Thanks feekerry, gona take a cyclizine and see if it helps prolong the effects of the couple ondansetron I have left xx

Louh12 Sat 22-Jun-13 17:45:23

Thanks Lucinda not managing to eat today although i want to lol but thts the joys oh the illness ay. Just laid on the sofa sipping water getting increasingly bored.
Sally as feekerry said you can take both medications together obviously if you react funny i.e dizzy etc just follow the same precations you would with any other medication.

Sally8655 Sat 22-Jun-13 18:20:53

Thanks everybody, I've taken the cyclizine, feeling pretty rubbish right now though. Just want to feel normal again. I'm going to try and have an early night in the hopes that a decent nights sleep will do some good. I hope it gets better soon. I'm starting to hate the 4 walls of my bedroom and I'm sure people who know I'm ill just think I'm being a drama queen. If only they understood. But then even the health care officials I've come into contact with dont understand. If I hear one more comment about eating ginger or crackers etc ill blow my top! Do they honestly think I didn't try that weeks ago! Rant over sorry xx

LucindaE Sat 22-Jun-13 18:32:11

Feekery Definitely get an emergency appointment and those meds as a failsafe, and possibly avoid letting this foul illness get a grip if possible.
Loub Poor old you, that isolation is so depressing.
Sally Do you think GP might take notice of all the info form Moh's website? But it's so difficult to argue ones corner with this. I think Hypers GP point blank would not let her have Ondansetron.
Thinking of you all.

Louh12 Sat 22-Jun-13 19:14:11

Lol sally my midwife does her own holistic therapies and she was telling me that i must be a cold person if ginger doesnt work i should try peppermint! i wanted to hit her

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