I'm just wondering if anyone could share their experiences of the care that they received during pregnancy if they have APS (antiphospholipid syndrome). I was not diagnosed until halfway through my pregnancy and have been told very limited information (that I needed to start aspirin as I am at higher risk of preeclampsia and then needed to start clexane to prevent blood clotting).
No one has explained to me that I am at risk of blood clots in the placenta which can affect the baby, I have found out much more from reading research papers myself.
I am concerned that no one actually knows about the condition because they haven't told me anything and that this may put mine and the babys life at risk. I am not having 4 weekly growth scans, they have not to my knowledge checked the blood flow in the placenta at any time, and I have no idea whether they are willing to let me go to term or want to induce me earlier. I am now 32 weeks and feel that decisions need to be made.
I guess my question is did others in the same situation have growth scans/doppler scans and if a plan was in place to induce/c-section then when was this decision made. I am hoping to see my consultant next week and feel the need to be armed with as much information as I can.
Sorry for rambling and thanks in advance.
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Looking for some advice - APS and the care I'm (not) receiving
1 reply
sillybillybee · 14/11/2011 13:56
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