I'm dying of MND and I need your help. Please.

[MummywithMND]

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

[edited by MNHQ to remove personal info]

[Osirus]

I signed it this morning when I saw it on Facebook. I assume it’s the same one I saw on a particularly popular equine group?

Best wishes to you. MND is a terrifying disease and more absolutely needs to be done.

[PurplePeach83]

I'm so sorry to hear what you are going through, OP. I have signed for you. Good luck with reaching the signature target and wish you all the best.

[MummywithMND]

That's me, yes. Thank you so much x

[crazychick89]

Signed x

[littlecrocodiles]

Signed, my heart goes out to you.
I really hope a cure can be found, or treatment to slow down its progression.

Sadly I know from a close relative just how devastating MND is. I will be thinking of you

[GertrudePerkinsPaperyThing]

Gosh OP. I’m so sad for you. You sound so brave.

Really hoping a cure or treatment can be found.

[Ellpellwood]

Signed, OP.

[GertiMJN]

Signed.

A truly cruel and devastating disease. You are incredible Mummy with MND

[Freddiefox]

Signed

[WildImaginings]

I have just signed

[Lalliella]

Signed OP. Very sorry for what you are going through

[blueshoes]

Signed xx

[Thierryhenryneedisaymore]

Signed.

[PeggyArmstrong]

Signed x

[Peta11]

Signed, wishing you well ❤

[steadysallyhope]

Signed xxx

[ITSADOGSLIFE21]

I have also signed. ❤

[Caramelsmadfuzzytail]

Signed. My mother had mnd. She lived with it for 5 years before dying in 2014. Unfortunately our relationship wasn't great. She had bulbar palsy.

[Dita73]

Already signed. I lost my cousin to MND last month. We’re all devastated. Sending love to you ♥️

[alwayscrashinginthesamecar1]

My heart goes out to you. My lovely brother in law was diagnosed early last year, he has two little kids too. I've signed it.

[Homehaircuts]

Singed

[Gettingthereslowly2020]

Signed the petition and donated to the MND Association. Only a small amount but every little helps.

[Homehaircuts]

Signed!

[PastMyBestBeforeDate]

When I was going through diagnosis for MS, that or MND were the likely outcomes. MS was the better outcome. Who knew MS would be the better outcome in any situation?
Yes, I'll sign.

[Lupinhere37]

I’ve signed too. I’m so sorry you are having to face this op. It is such a cruel disease and my heart goes out to you. Sending you good wishes xx