Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...
I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?
Now I need you.
The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.
Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research
Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.
Please. Sign it and ask everyone you know to sign it ❤️
petition.parliament.uk/petitions/564582
[edited by MNHQ to remove personal info]
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I'm dying of MND and I need your help. Please.
251 replies
MummywithMND · 30/03/2021 23:43
OP posts:
Am I being unreasonable?
125 votes. Final results.
POLL
You are being unreasonable
6%
You are NOT being unreasonable
94%
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