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Petitions and activism

To ask you to show your support for those with chronic illness and sign this petition!

22 replies

hiddenaway34 · 08/10/2016 01:37

This is a campaign of a friend of my DC.
It's about how people with Ehlers Danlos (a chronic illness) are excluded from the Paralympics and are often told they can't compete in the Olympics. For most Ehlers Danlos is dibilitating and can leave people having to sometime use whell chairs or walking aids. Yet if they had EDS named as a condition (other conditions like hyper mobility (on its own) chronic pain) are automatically not classified. Please help shed love 100 signatures thank you!
www.change.org/p/international-paralympic-committee-to-allow-those-with-ehlers-danlos-syndrome-to-compete-in-the-paralympics?recruiter=47025370&utm_source=share_petition&utm_medium=copylink

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MiscellaneousAssortment · 08/10/2016 02:41

Signed.

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boo2410 · 08/10/2016 03:10

Signed.

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RhodaBorrocks · 08/10/2016 05:09

Signed. I have EDS too, a rarer type that might out me so I won't say which.

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hiddenaway34 · 08/10/2016 10:28

thank you!

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hiddenaway34 · 08/10/2016 11:07

Oh Rhoda we know so many people with diffrent types of EDS. I dont see why its outted

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crashdoll · 08/10/2016 11:29

I have signed but can I just comment on the wording. Firstly, it's too long. You'll get more people to sign if it's short and snappy. Secondly, the aspiring Paralympian is not "confined to his wheelchair". Sorry but it's a pet peeve of mine as it's disabling language.

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hiddenaway34 · 08/10/2016 12:21

Thanks crashdoll.ut you do have to rember it was done by a 16 year old!

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hiddenaway34 · 08/10/2016 20:21

bump!

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alwaysconfused43 · 08/10/2016 22:51

signed

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SouthWestmom · 08/10/2016 22:52

Why are they excluded from the Paralympics?

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hiddenaway34 · 08/10/2016 23:09

i think i read somewhere its because it varies but im not sure!

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SouthWestmom · 08/10/2016 23:15

Oh okay, thank you

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hiddenaway34 · 08/10/2016 23:16

Have you signed! May i ask

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BigDamnHero · 08/10/2016 23:26

Also signed. I know three people with EDS. One has just got a wheelchair and has had to accept she's almost certainly not going to have the life she had planned for herself. It really can be debilitating.

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hiddenaway34 · 08/10/2016 23:27

Thank you!

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user1471506380 · 09/10/2016 00:49

Signed. My DCs have EDS.

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NoMudNoLotus · 09/10/2016 01:21

Absolutely totally agree.

Thankyou for starting this thread Flowers

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OvariesBeforeBrovaries · 09/10/2016 01:27

Will sign. I have EDS as do the rest of my family.

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GreatFuckability · 09/10/2016 02:10

i've also signed. what an odd set up. My dd1 has hypermobility and is a promising gymnast. is it because the hypermobility aspect can actually be a benefit or something?

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kali110 · 09/10/2016 02:13

Signed

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planbatman · 09/10/2016 03:54

Fair few of us with EDS. Signed!

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hiddenaway34 · 09/10/2016 08:35

Yes i believe ive read that somewhere but its hardly helpful if you knee dislocates as well! Shes tring to get the petition shared on twitter by people at the moment anything you can do to help is gratefully received Thank you all so much!!

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